I know Gavin struggles in most areas of his life. That's just the reality of the situation and I won't sugar coat or spin that. It's frustrating as his parent because I find myself having to micromanage is life and I don't want to be doing that.
Having said that, I have a spot of good news.
Gavin is doing better with his IVIG infusions. When his infusions started up again, after the medication shortage issues, he couldn't do his infusions on his own anymore. Maybe too much time had passed and he forgot how to do them properly?
Truthfully, I don't know.
I'm relieved to share that the last few infusions that have been done, he's done entirely on his own again. He's doing a very good job and it seems the practice is paying off.
He's not wasting the medication while trying to get the air bubbles out the syringe.
Today however, he struggled. He did great putting things together and I only had to fix one minor problem.
Where he struggled was the way he dealt with the needles. He was screaming and carrying on when he would normally not make a peep. It appeared to be mostly drama, which Gavin is fond of. We didn't play into this and instead remained as emotionless as possible and explained that if he doesn't calm down, he will need to go to his room until he could.
It may sound cruel but if this wasn't needless drama, I don't know what is.
I don't doubt the needles hurt but he's been doing this for at least five years and we rarely see him carry on like this. Maybe he was not coping well today? I don't know. What I do know is it seemed like it was 90% drama and 10% something else. What that something else was, I don't pretend to know.
All I know is it felt awful to react the way we did but we know him very well and he needed redirected.
After he calmed down, he ended up doing fine. If we had let him carry on the way he was, it would have simply escalated.
Aside from that little Oscar winning hiccup, he did a great job of putting everything together. Hopefully, he'll continue to improve and this will be one less thing we have to worry about.
