Gavin’s labs have finally come in and it’s better than bad news. His Absolute Neutrophil is up to 2.8 from 2.4 last week. This is good news because the numbers are moving in the right direction. At the same time, we still have no idea what’s going on.
We’re still waiting to get into Hematology because this is the best chance we have to identify what’s going on and how we can address it.
I feel a sense of relief at he moment because his members are good right now and will probably be good for the next couple of days. I can’t let my guard down because we have learned over time, that with Gavin, what goes up must come down. It’s like we’re waiting for the proverbial other shoe to drop. It always does.
Truthfully, it’s not easy for me to ever be comfortable with any of these labs because they change so quickly.
For the moment, and despite these other fears, I’m still grateful for the news we have received today.
Well, hematology isn’t a special needs issue so that part really doesn’t matter and world renowned or not, if they felt that time was of the essence they would have Gavin in their office tomorrow. I don’t say this as a slam, but more to put your mind at ease. If they felt that Gavin’s condition was serious enough they would get him in there. I spent 2 years making my way through the medical system for cancer and you realize how serious your situation is when you get test results on Friday and the best oncologist on the east coast has you in his office on Monday.
Kim,
The particular doctor we need to see is not easy to get into. Perhaps it’s better to think of him as Dr. House. Not every patient needs to be seen by him personally.
Gavin is definitely in need but it’s not dire at the moment. They have to triage. Between that and records, it’s taking some time.
We’ve been doing this a long time and there are still doctors that we’ve tried for years to get into see and it never happened.
This isn’t the first time we’ve run into this and probably won’t be the last. It’s frustrating but Gavin is being closely monitored.
I think you’re you’re right. I’m still freaked out by Gavin’s problems but we know the treatment should we need to go down that road. This is more about information than anything else. We need to know what’s causing this. Immunology would likely be the ones to treat it. ☺
I don’t understand why you can’t get in to see hematology; it seems like you’ve been waiting for a while and I know that sometimes specialists can get booked up, but I’ve always had a nurse navigator or someone from my doctor’s office make that call and get me in almost immediately. Can’t Dr. Reynolds pull some strings or something to get you in?
It’s just the way it is. This is a specialist who sees patients from all over the world. As withany doctors needed by special needs kids, there is a process to getting scene.
There are some paperwork issues that delayed things as well. Gavin also has extensive records that have to be reviewed before we can get an appointment. It’s frustrating on my end as well. This isn’t a Dr. Reynolds thing. It’s an immunologist referral and they are working on it.