I didn't write much yesterday because it was a rather trying day. Whenever I don't publish at least three or four posts a day, it's a safe bet that things aren't going so well.
Yesterday was full of challenges related to Emmett's fever disorder. He was in a horrible mood for most of the day and had zero tolerance for pretty much everything. I lost track of the meltdowns, but there were quite a few.
I personally had the hardest time when it came to dinner. There wasn't anything in the house that he would eat.
Emmett's tough to feed on a good day, very challenging to feed on a bad day, and impossible when he's in a fever cycle. Last night was one of those impossible times, and it sucked.
Poor Emmett was really hungry, but his very limited list of tolerable foods is even more limited when he's in a fever flare. When he's in a flare, he becomes so much more sensitive to everything around him. He becomes overwhelmed very quickly, and his sensory issues kick into overdrive.
This typically lasts for the duration of the flare, and that can last up to ten days or more. Like I said, it sucks.
Last night there wasn't anything Emmett would eat, and at 7 pm, I ended up running to the grocery store to pick up a few items that I was pretty sure he would eat.
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It's horrible when your child is hungry, but because of things outside of their control, they find themselves unable to eat what's available. It's important to understand that this is not your typical picky eater. Kids like this will literally go hungry, rather than eat something that is sensory offensive.
I digress...
Unfortunately, this unplanned trip to the grocery store will be the last one we can make until I get paid at the end of next week. That's going to make things very challenging for everyone.
Before I left for the store, we tried to come up with ideas that would work for Emmett. He was able to help a little, but he was also completely overwhelmed.
For whatever reason, Emmett wanted ham, and so I bought a medium-ish sized chunk of ham, which is really expensive. I don't buy ham that often and I almost had a stroke when I saw the price. At the same time, if Emmett will eat it, that's a major win, and well worth the unplanned expense.
Thankfully, when I got home from the store, Emmett ate a big slice of ham that I heated up in the air fryer.
I ended up spending the bulk of our buffer for the next week or so, and things will be really tight. That's unfortunate, but the alternative is not acceptable. Emmett has to eat, and I'll do whatever I have to, in order to ensure he does.
There are going to be stressful days ahead because Emmett's in a flare, and I'm going to be very limited financially.
Having said that, Emmett's eating, at least night. There's more than enough ham for the next few days. I picked up some other things that he's likely to at least try as well.
The other positive thing that came out of this was getting to spend some one in one time with Elliott. He had asked to go with me to the grocery store, and I obviously said yes. It was nice to get to spend that little bit of time with him. We got to talk a little bit and it was the highlight of my day actually.
Elliott's going through a rough time but he was in a good place last night.
As overwhelmed, frustrated, worried, and stressed out as I am, things could always be worse. Frankly, I feel blessed that I'm getting enough work to allow for me to make an unplanned run to the grocery store. It's not perfect but I was able to do what needed to be done, and that feels good.
