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Emmett John5 min read

How Autism related meltdowns impact me as a parent, and how I cope

June 8, 2017

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How Autism related meltdowns impact me as a parent, and how I cope

One of the hardest parts of being an Autism parent for me this week so far, is meltdowns. When it comes to Autism, I always tell people *never make assumptions. *Having said that, I feel pretty safe saying, *if you're an Autism parent, you're probably intimately acquainted with meltdowns. *

Meltdowns are exhausting for everyone, not just the person having one.

I mentioned earlier in the week that Emmett was coming into a new fever cycle. When he hits one of these things, he's generally quite miserable, and far more prone to meltdowns.

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The fever cycles don't cause the meltdowns directly. They seem to decrease his ability to cope with all the things around him, that would already lead to a meltdown. Things like light, sound, his clothes, and pretty much any other sensory related sensitivity you can imagine.

Let me say that first off, I'm a freak. When it comes to the boys having meltdowns, I rarely get upset. It drives Lizze crazy, because I generally remain really calm, and she may be at her wits end, as would most other people.

I have a seemingly endless amount of patience, when it comes to my kids. If you ask the people closest to me, they would likely agree.

Here's the thing.

I don't have an unlimited supply of patience, because my kids drive me fucking crazy. It wouldn't be a *normal *day if one or more of my kids haven't made me want to hop on the next train to crazy town and lay low for awhile. I should buy a house there, because I'm there often enough.

I've been thinking about this recently, and I've figured out what I'm doing to help ensure I always have enough patience for my kids. I don't think I consciously do this either.

What happens, is my kids get all the patience I have. Perhaps my patience pool is deeper than most other people's, but it's not endless. While I have a great deal of patience with my kids, heaven help the average person that says the wrong thing to me, because I don't have patience to spend on them.

It seems like I have endless patience because I shunt all I have, and reserve for those most important to me. I should print out a shirt that says, *I only have patience for three people today, and you're number four. *lol

Anyway, back to Emmett and his meltdowns.

Emmett's a loud kid in general. We're told it's a sensory thing for him. He has an *indoor *voice, but he rarely if ever uses it. It's like a baby pigeon. Everyone knows baby pigeons exist because adult pigeons have to come from somewhere, but no one ever sees them.

When he melts down, he screams at us. I mean, he literally screams every single word he says. In my opinion, and based on the very nature of meltdowns, this is outside of his control.

I don't think he's intending to scream, but in that moment, he's so completely overwhelmed by everything, he just purges. A meltdown is basically an involuntary action, by which the body purges because it can look longer process anything.

Think of it as a system overload.

Emmett had roughly half a dozen system overloads today, and while I did maintain my composure, I'm completely exhausted as a result. It's really easy to overlook how exhausting it is for a parent to deal with a single meltdown, let alone multiple meltdowns a day.

When Emmett is in a flare, the threshold at which a meltdown is triggered, is significantly lowered. It honestly doesn't take anything to set him off.

It felt like one meltdown after another, the last one being around 9 PM, when he should have been sleeping.

There is no way to reason with Emmett, or any other child for that matter, when they're in a meltdown. In most cases, we have to hunker down, and wait it out.

I'm far from perfect, and on nights like tonight, I come damn close to running out of patience. I sometimes have to put myself in time out, so I can keep myself centered, so to speak.

At the end of the day, it's all about maintenance. When I feel myself on the brink of losing my cool, I remove myself from the situation for a few minutes, even if I need to hide in the bathroom. It's a way for me to collect myself, and remember that the meltdown I'm struggling to deal with, is so much worse for Emmett. He's a child who's so completely overwhelmed, the only thing he can physically do, is Purge.

Days like yesterday, are exhausting on so many levels. I'm in a state of hypervigilance, because I possess enough insight to know that meltdowns are coming, but not enough to know when and where they're going to happen. It could be hours or seconds away, and I try not to be caught off guard.

Like I said at the beginning of this entry, meltdowns have pretty much kicked my ass this week.

Hopefully, I'll get a good night's sleep because it'll be more of the same in the morning.. ☺

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