In a short while, we will be making our way to see the amazing Dr. Moodley at the Cleveland Clinic.  This appointment was originally scheduled for the end of the month but they wanted to see him sooner due to his recent hospitalization.

While we are there I have to procure some records to scan and email to John’s Hopkins Ataxia Telangiectasia Clinic.

I don’t know what more can really be done but we might have to adjust his medications a bit to try and further stabilize him.  At this point though, everything that can be done, is being done. Even though it doesn’t feel like we are doing everything possible, we are. 

I don’t expect anything major to occur as a result of this appointment. 

The truth is that I’m only human and I’m losing hope. The reality is that as a father I can’t afford to allow hope to elude us.

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