I spoke with Gavin speech therapist yesterday because she wanted to talk before meeting with Gavin. She's really cool and does a fantastic job of working with Gavin.
She has expressed concern because Gavin is having meltdowns at every appointment.
When she tries to talk him down or says anything at all, he just gets more upset and agitated. For the record, she handles Gavin amazingly well, so this has nothing to do with her.
The worry is that with his increasing medical instability, these meltdowns aren't a positive thing.
She's also noticing more speech difficulties but can't address them without Gavin freaking out.
He had only a few minutes left after we finished speaking but in the 5 minutes, he lost his cool and yelled at her.
I believe these are actually more meltdown and less tantrum. He's simply frustrated because he can't do what he used to be able to do. 6
I told her that we will defer to her best judgment in this matter. Lizze and I are both realistic and know that in the most perfect of conditions, there is only so much that can be done. With Gavin's situation being far from ideal, this is all that more true.
At this point, she wants to keep trying, at least for another session or two. If his behavior continues, we will have to discontinue Speech, at least for now.
On a good day, Gavin's hard to understand. As you know, there aren't many good days anymore.
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