In the morning, we have yet another Wraparound meeting at the boys school. As much as I love our Wraparound team, Lizze and I are seriously considering dissolving it and moving on.
We don't seem to be getting anywhere and Gavin's health is getting worse.
Right now, Lizze and I are running on very, very limited resources and anything that not working is weighing us down. Does that make sense?
If we decide to pull the plug, it will have nothing to do with not being grateful for everyone's time and effort. It would simply mean that it's just not working out.
Truth is, Gavin's mental health has once again taken a back burner to his physical health. Also, I think that are situation is so unique, no one knows how to help us. We kind of fall into one of those places where there really isn't anything that most people could do.
We need a real life Dr. House......
We need to take Gavin somewhere that a team of doctors can pour over him, from all angles and figure out what the hell is going on, how bad it's likely to get and what if anything we can do to slow done the progression.
I don't care if we have to stay there for a month. We need answers and I feel like time is slipping through our fingers.
I'm running out of patience and I'm terrified that Gavin is running out of time.
How are we supposed to focus on anything else with this weighing so heavy?
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