We just got off the phone with Lizze's new Gastrointerologist at the Cleveland Clinic. We were forming a plan of attack to address the possibility of her actually having Celiac disease.
In the past when tested, the bloodwork came back positive for the antibodies associated with Celiac.
However, subsequent endoscopies and colonoscopies were negative.
We just assumed that all was well. Having said that, after listening to all Lizze's symptoms last week, her new doctor's first thoughts seemed to be about Celiac and that's what's open this discussion once again .
Personally, I'm very familiar with Celiac because we have it in my family. My Mom was very, very ill and at times, found to be in life threatening situations as a result of going undiagnosed for so long. She had lost most of her bone density and appeared to be having cardiac problems.
Anyway, my Mom's been on the diet for gosh, almost a decade now and has pretty much recovered. In fact, I'm trying to get her to start writing a Gluten Free section here on Lost and Tired. I'll let you know how it goes.
Now back to my original question.
Is it wrong of me to hope for a Celiac diagnosis?
Here's my position on this. Lizze is struggling with chronic pain, debilitating daily migraines, depression, sleep disorders, lack of energy as well as tummy issues.
These have been long standing problems and haven't been tied to anything else, despite exhaustive testing.
According to the Cleveland Clinic, many of her issues could very easily be tied to Celiac, if not, all of them. At this point in the game, there is nothing really that we can do for her because there isn't anything that seems to help.
If she does indeed have Celiac, that would present a unique opportunity to get her symptoms under control and maybe even get her life back.
To me, that seems like a far better alternative to living in chronic, untreatable pain.
That's basically my desperate logic. Any thoughts?
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