I have been trying to process all of this new information about Gavin’s health. To be completely honest, I’m a bit overwhelmed at the moment. Thinking about everything Gavin has been officially diagnosed with is breaking my heart and scaring me to death.
So far Gavin has been diagnosed with Aspergers, OCD, ADHD, Bipolar disorder, Schizoaffective disorder, Asthma, PTSD, Primary immunodeficiency, an exotic degenerative neurological disease and now epilepsy.
It’s a long list of mostly rare and unusual disorders. This also doesn’t include Dysautonomia, which he is going to the Cleveland Clinic on Friday for.
Some of these are very serious and others are simply challenging.
Not only do I live in fear of where this journey is going to take us but also what it may take from us.
I can’t focus on anything else right now and I really, really need to.
**Thanks for reading**
-Lost and Tired
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Posted from WordPress for Android so please forgive any typos as auto-correct and I don’t see eye to eye. 🙂
We are thinking of your family and keeping you all in our thoughts and prayers. I hope that you have family and friends that can and will help you out and be there for you. I hope that better days are soon to come. You seem like an awesome father and husband, keep up the fight and remember to take care of yourself too.
In times like these I say to myself over and over again, "God grant me the Serenity to accept the things I cannot change, the Courage to change the things I can and the Wisdom to know the difference." Some times you have to loosen your grip and give your worries back to the universe. You have so much on your plate and the truth is, you wont have answers to everything right away. Sometimes you have to wait while it unfolds before you and have faith in yourself to do the right things. If you can, take peace in that. It is both terrifying and peaceful to finally free yourself of some of the responsibility. Hold yourself accountable for what you can do for Gavin right now, but realize that some things truly are out of your hands and worrying about what might come to be is absolutely futile in that case. Come what may and love it. Easier said than done, but true none the less. And to be really honest, this is something I personally struggle greatly with, but these are the thoughts that help me get through.
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