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My thoughts2 min read

I'm really starting to lose faith

April 12, 2012

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Poor Mr.  Emmett John is once again facing another medical issue.  He has finished up his last day of Prednisone the other day for his then current flare and has already started another flare.

I don't think that we have ever seen this happen before.

If you look below,  you will see just one of the *large* mouth sores.  Since she these are not herpes related, there is very little we can do.  In fact, the only treatment is Prednisone* *and Unfortunately,  there is a major draw back to using that.  Basically,  it suppresses his immune system and leaves him susceptible to things like pneumonia.  He just recovered from pneumonia a couple of weeks ago.

We have a few calls in right now because we don't know what to do.

We have,  or rather I have,  and emergency type appointment with Gavin’s psychiatrist in about 2 hours. We may have to get Emmett into the immunologist at Akron Children's Hospital today as well.

How the friggin heck do I prioritize these things.  Emmett's in a great deal of pain but Gavin’s basically going crazy. We seem to find ourselves in these goddamn situations *way to often *for my liking.

To top things off,  we lose the van in the morning for at least tomorrow and possibly more.  The friggin thing is still breaking down and literally acts like it's *possessed. *Our not even 3 month old van has become unreliable and unsafe. It's like we still have our old van,  you know,  the one that was a complete disaster and recently stolen and totaled.

The only difference now, is that not only are we still struggling to pay off the major repairs we had done to the old van about 2 weeks before it was stolen,  but we now have a car payment on top of that as well.

Now this goddamn van has to go into the friggin shop already.  I just can't seem to focus on anything else that needs to be done. There are simply to many bigger things to worry about.

Everything else has to go back on hold..

***Thanks for reading***

*       -Lost and Tired*

*Please join our Community Autism Support Forum*

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Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

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