I need some advice for people *in the know*. Last Friday, Emmett was at the immunologist. She manages Emmett's rare fever disorder.
This was just a follow up visit but we left with new concerns.
I mentioned a few times how Emmett complains of pain in his joints, mainly his elbows. Something I have noticed is that his hands are almost hot to the touch, even when he's not running a fever
I forgot to mention that while we were at the appointment, however, because of Emmett's joint pain, the immunologist is concerned that Emmett may have rheumatoid arthritis.
We are waiting for our appointment with the rheumatologist. This has us a bit worried and I'm wondering if anyone has had any experience with juvenile rheumatoid arthritis?
My second question is about Elliott. I haven't posted about this yet but Elliott has been complaining about *hip* pain.
I didn't really think anything of it but it has been bothering him on and off now for about a week. We called his pediatricians office today and he will be seen in the morning.
They mentioned that they are concerned about *connective tissue disease* or something like that. They said that his extremely low muscle tone many actually be secondary to this connective tissue thing. Basically, they are concerned that the low muscle tone may actually be a symptom of this.
They said that with some of the things Lizze has going on that this is a possibility.
Sigh.......
Does anyone have any idea what this means? Julia, I guess this is more directed at you. :-)
As I'm writing this, and I can't remember if it was Elliott or Emmett -Lizze will know for sure- but one of them had their hips looked at when they were younger because there was to much movement in the socket. I can't remember which that was now and it's driving me crazy.
Anyway, if anyone could shed any light on this for me I would greatly appreciate it.
Thanks :-)
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