specialneedsparenting Archives - Page 14 of 15

I completed my Daddy-Do list today

My day is finally winding down and aside from dinner and putting the kids to bed later on, my Daddy-Do list is finished. I was able to put a check mark in every single box today, except time on the treadmill. I just wasn't home enough today to do that. I'm hoping to check that off the list in the morning. The boys have done really good today and I'm super proud of them, especially considering how nonstop today has been. After the kids go down, I'll bring you all up to speed on how therapies went today and something worrisome, Gavin told us about. Stay tuned..

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January 17, 2017

My thoughts

It’s been nonstop today

It's been a busy day already. I took the boys to school and afterwards went to get the water jugs filled. Unfortunately, they weren't open yet so I returned home and finished getting ready for a service guy that was coming out. I even had a business call as well. It's about noon and I finally have a little bit of time before my next thing I have to do, so I figured I'd try and write a few things and then move on with my day. So far so good. Elliott and Emmett did great this morning, as did Gavin. I have still been thinking that today is Monday but I've put an it's Tuesday wallpaper on my phone and tablet, as a reminder. ☺ All in all, it's…

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January 17, 2017

General Update / My thoughts

Reflecting on this past weekend has taught me 3 things

The four day weekend is almost over and we have lived to tell the tail. :-) All joking aside, it seemed like a longer weekend than it actually was. The boys were the boys and that's not a bad thing. They were all challenging at times but I have great memories with each of them over the past four days. Challenging doesn't always mean bad. What challenging typically means for me is exhausting. This weekend was exhausting even though we didn't go anywhere. It was exhausting listening to Gavin and constantly trying to stay at least a few steps in front of him. It was exhausting trying to get the two youngest to eat what we bought at Aldi's. I would say that in most cases, we were unsuccessful in making Aldi's…

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January 17, 2017

Announcements

I’m being interviewed today

Fun fact, I'm getting interviewed this morning by Susan Wheeler-Hall BSW, NGH. Susan is an Author, Coach, Educator, Speaker and Radio Host. She'll be interviewing me around 11 am this morning. I'm not sure what we'll be talking about but it should be fun. The boys are home from school today and I'm hoping they will cooperate.. ☺

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January 16, 2017

Gavin / My thoughts

2 behavioral oddities reminded me that I’m only human

Unfortunately, Gavin's had a rough day. I feel I need to stress that this wasn't behavioral, at least in the way it would have been a few years back. The first issue is in regards to Gavin's bladder problems returning today for the first time in a long-ish time. This is par for the course with Gavin because these things pop up now and again. The first thing we will do to address this is work with the Miralax again. We had backed off a bit because everything was going well. That's all we can do at this point. As for the second issue or challenge, I think that was probably harder for me than it was for him. The problem was that Gavin required a great deal of patience…

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January 16, 2017

My thoughts

What his stomach looks like after an IVIG infusion

I wanted to take a minute and share a bit of insight into what Gavin experiences in regards to his IVIG Infusions. Gavin receives these medically necessary procedures twice a week and will do so for the rest of his life. These infusions provide him with the immune system his body naturally lacks. Without these infusions, his body would not be able to fight off infections. While these treatments are a blessing, they aren't always pleasant. The pictures below show what the infusion sites look like and it's incredibly unpleasant for him. Gavin has almost no body fat and so all the swelling is from the infusion

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January 14, 2017

General Update / My thoughts

Quick Update

We had to get both Gavin and Lizze's bloodwork done this morning. Everyone cooperated pretty well and I'm grateful for that. We also had to stop by the UPS Store on the way home. Elliott and Emmett were distracted by Pokémon Go during the hour or so we were gone. They actually had fun, which made everything much easier. Everyone is in a good mood this morning, at least for the most part. I'm hoping that good mood will continue when we get home because I have some small projects I'd like to work on today.

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January 13, 2017

Inspirational Posts / My thoughts

Are #Autism Parents Overprotective?

Being a parent period, is a difficult but rewarding task. When you're an Autism or Special Needs parent, that difficulty level is increased to the nth degree as is the reward factor. Raising a child with a developmental disorder like Autism, is extremely difficult because of the very nature of the disorder. Autism is a very dynamic condition and often presents in a very fluid manner. This means that everything involving the parenting of a child with Autism can more often than not be a moving target. In my personal experience with my three boys on the Autism Spectrum, something that works today, may never work again. Likewise, something that's never worked before, could actually work today. Every single day that I wake up, I honestly have no idea what…

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January 12, 2017