special needs Archives - Page 349 of 521

UPDATE: We met with Elliott’s pediatrician and it didn’t go as planned

Last Thursday, we took Elliott to the pediatrician because she's taking over his ADHD management. We were also there to discuss Elliott's headaches and maybe get a referral to a specialist. The ADHD part of the appointment went really well. There's not a great deal to managing ADHD aside from the medication and follow ups every three months. When we began talking about his headaches or migraines, I asked if this could be related to dehydration. Elliott doesn't drink nearly enough water and before we go any further down this road, we're going to focus on his hydration and see if that helps. Elliott doesn't drink much of anything during the day and it's very difficult get him to drink water. The doctor explained to Elliott that we are absolutely…

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February 26, 2017

Gallery

Cool pictures from the last few days

I wanted to take a few minutes tonight and share some pictures from the last couple of days. I'm a little behind on the updates but you can at least see some in the moment shots. I'll follow up tomorrow with a couple of updates.. ☺

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February 25, 2017

My thoughts

We have no kids today

The kids were gone last night and won't be back until dinner-ish today. Lizze and I stuck close to home last night because our plans today will take us out of town for a little bit. It's not going to be anything major, but we're going to lunch and to do some shopping. We went to bed relatively early last night and I was up pretty damn early this morning because my Dad was coming over to help me fix the ass backwards plumbing in our shower. It took a bit of improvising but we now have a working shower again and for that, we're grateful. I'm feeling pretty energized today and not at all needing to take a nap. I know I probably should take advantage of the time…

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February 25, 2017

Emmett John / My thoughts / Sensory / Shoes and Socks

My son’s sensory issues totally kicked my ass today

Mother of God, I didn't think we were going to survive this morning. Everyone was in a great mood and that's awesome. Elliott and Emmett were getting along and there wasn't any fighting whatsoever. Let me tell ya, that almost never happens. All of that awesomeness ended the moment it was time to put shoes and socks on. Our mission of helping Emmett tolerate his shoes and socks began about 7:15 am and we finally arrived at the school at 9:00 am. It took almost two hours to work through the sensory issues this morning. There was so much screaming and panic over how his socks felt funny, I wouldn't be surprised if my neighbors, three doors down could hear him. We came so close to throwing in the towel and…

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February 23, 2017

Inspirational Posts / My thoughts

Why #Autism Parenting blogs are SO important

There are always those people who don't understand or misunderstand the purpose of this site or my writing style. I wanted to provide some insight into the how's and why's because I've received a large influx of new readers and I'd like everyone to understand why I do this. I'm connecting with quite a few families that are just beginning their Autism journey. They're looking for a path, and I'm able to help provide them with a place to start and sanity as they move forward. When people are just beginning this journey, they feel very much alone. There are feelings of isolation and that no one understands. While some may not understand this, Special Needs parents find comfort in knowing they aren't the only ones depressed, frustrated, overwhelmed, imperfect,…

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February 22, 2017

Gallery / My thoughts

Pictures from our busy #Autism family day

I wanted to share some of the pictures from today. Included below are pictures from speech and OT to fun with our ferrets and running errands. These simply help give you some insight into what goes on in a typical-ish day for my Autism family... ☺

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February 22, 2017

Common Variable Immunodeficiency / Gavin / General Update / Immunology / IVIG Infusion

Major Update on Gavin’s missing medications

Throughout the day, I had about half a dozen different conversations in regards to Gavin not receiving his IVIG medications and supplies. I spoke with his doctor, his insurance case manager and the head pharmacist at the pharmacy we want to switch to for his supplies. Let's get this out of the way first. Gavin's doctor's office was finally able to get things straightened out with our current supplier. The supplier appears to be who dropped the ball on this one. Setting aside blame and focusing on what matters most at this very moment. I can share that Gavin's medications have been reordered. They should be arriving on Wednesday. How am I going to prevent this from happening again? The simple solution to fix this is going to be complicated…

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February 21, 2017

Gavin

Why I sent my #specialneeds son to his room

It's been one of those days were Gavin being Gavin has really been challenging for me. It's not his fault and I'm not angry with him at all but I am frustrated, exhausted and overwhelmed. The issue for me is that he's not functioning at a very high level today and he's creating more work for me as a result. I'm having to constantly chase after him, keep him from hurting himself in accident and the repetition.. OMG the repetition.. Some of you will understand that statement, some of you will be empathetic and others will think I'm putting Gavin down. The reality is that I'm voicing my frustrations over a situation I'm currently existing in. Speaking about my feelings, has absolutely no impact on whether or not I love…

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February 19, 2017