Special Needs Parenting Archives - Page 62 of 520

I got yelled at a lot tonight and it f*cking sucked

There's so much to talk about but I'm exhausted beyond belief and want to call it a night. Thay said, I figured I'd sum everything up quickly and maybe provide more detail in the morning. The boys had a visit this morning with their mom. They left around 9 AM and were back a little before 3 PM. I did absolutely nothing while they were gone. At first I felt guilty about that but that didn't last too long because I needed sleep. I crashed on the couch with Ruby for a decent power nap and ended up feeling better after. When the kids got home, Elliott was upset again but he wasn't dwelling on it so I told him that I was there if he needed to talk. Emmett…

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September 15, 2019

My thoughts

We were able to escape our lives for a little while yesterday

Yesterday was a really long day. It was spent on the Cuyahoga Valley Scenic Railroad, and it was pretty amazing. The boys and I had never ridden on a train before and we can now check that off our bucket list. We arrived early and rode the train to the end of the line. On the return trip, we stopped at the small town of Peninsula, Ohio (population 500). The train would pick us back up about 4 hours later. During that time we were able to explore this beautiful little town and spend time as a family. We had a fantastic lunch, before visiting an art gallery, gift shop, ice cream parlor and a few other little town stores that lined the main street. It was a really nice…

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September 15, 2019

My thoughts

We have the most amazing day planned at the @CVSRR

This will likely be the first and final update until we get home today. We made it to the Cuyahoga Valley Scenic Railroad safely and on time. That's right, on time. In fact, we were about 45 minutes early. ☺ Not sure how long of a day this is going to be but it's a much needed break from all the stress in our life right now. It's going to be an amazing day and I'm so grateful for the opportunity. ☺

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September 14, 2019

My thoughts

I’m so incredibly excited about today

I want to close the day on a positive note. I'll talk about the rest later. The boys and I have an early day ahead of us. You may remember I mentioned last month that my birthday present this year was tickets to take the kids on a scenic train ride. We're super excited, as none of us have ever ridden a train before. It's like a stroller for big kids. 😂 We will be spending the day on the Cuyahoga Valley Scenic Railroad. Here's a brief video about what we're going to experience. https://youtu.be/qpWfKf3oGv8 It's about an hours drive from our house and we have to leave super early. My parents are coming with us and that's awesome as well. This will take most of the day from what…

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September 13, 2019

My thoughts

I feel like shit right now

The boys have mostly recovered from a very difficult morning. They were very quiet when they got home, which normally, I'd be throwing into the win column but they were quiet for the wrong reasons. Eventually, the quiet turned into screaming and yelling because Elliott and Emmett were at each other's throats. They just sorta turned on each other. We're now finishing up dinner and I'm taking everyone to the park. I feel like shit right now because this whole thing has me physically and emotionally exhausted. This is a lot to deal with, especially when I have my own emotional struggles I'm working through. That really doesn't matter because there's a greater good being served by pushing myself a little more than I'd like to tonight. These guys need…

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September 13, 2019

Elliott / Emmett John / My thoughts / New Beginnings

My heart is breaking for my kids

The kids got off to school, but Elliott was already struggling before he left. To his credit, he went anyway and I'm proud of him for pushing himself. I know it's not easy for him or Emmett but it's only been a month and they need time to heal. Being Autistic, likely means that this will be even harder for them. Gavin and I went walking with my Mom after dropping the boys off at school. I think she's about 2 months post knee replacement now and this is the first time I've been able to walk with her for a long time. We used to meet every day and walk a few miles but her knee was so bad that she couldn't. She's doing awesome and we walked 1.5…

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September 13, 2019

Clozapine / Gavin / My thoughts

There’s yet another snag in getting Gavin’s meds refilled and I’m seriously frustrated

Gavin had his blood work done first thing Monday morning. The lab has had almost four days to run them and fax the results to the pharmacy. They have yet to do so. Mind you, this is a stat order meaning it's a priority and should be completed the same morning. Unfortunately, getting the lab to fax the results has been an exercise in futility. This time however, it wouldn't have mattered anyway because the new script never came through correctly and had to be resent this afternoon. Hopefully, everything will be in order for a afternoon delivery today. At this point, I still don't know if the updated script will even be approved. Gavin's had six months of good numbers and that's makes him eligible for a 14 day…

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September 13, 2019

Elliott / My thoughts / New Beginnings / School Related Issues

Love, patience, understanding and therapy

It's been a day. That about sums it up. It's not been particularly good or bad, it's just sorta blah. The kids got to school and did so mostly on time. Gavin and I went walking after that and he did really well. I totally feel like we'll be able to bump things up next week and continue building from there. I've got a shitload on my plate and I'm trying to get through some of the backlog without continuing to get buried. It's not an easy undertaking and frankly, I suck at it. Well, I know I need to do better. I suppose that's a nicer way to put it. I'm still trying to find a new car. I'm about 90% on the financing but there are some things…

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September 12, 2019