Read more about the article Major Update on Gavin’s missing medications
Common Variable Immunodeficiency / Gavin / General Update / Immunology / IVIG Infusion

Major Update on Gavin’s missing medications

Throughout the day, I had about half a dozen different conversations in regards to Gavin not receiving his IVIG medications and supplies. I spoke with his doctor, his insurance case manager and the head pharmacist at the pharmacy we want to switch to for his supplies.  Let's get this out of the way first.  Gavin's doctor's office was finally able to get things straightened out with our current supplier. The supplier appears to be who dropped the ball on this one.  Setting aside blame and focusing on what matters most at this very moment. I can share that Gavin's medications have been reordered. They should be arriving on Wednesday.  How am I going to prevent this from happening again?  The simple solution to fix this is going to be complicated…

2 Comments
February 21, 2017
Read more about the article Why I sent my #specialneeds son to his room
Gavin

Why I sent my #specialneeds son to his room

It's been one of those days were Gavin being Gavin has really been challenging for me. It's not his fault and I'm not angry with him at all but I am frustrated, exhausted and overwhelmed.  The issue for me is that he's not functioning at a very high level today and he's creating more work for me as a result. I'm having to constantly chase after him, keep him from hurting himself in accident and the repetition.. OMG the repetition..  Some of you will understand that statement, some of you will be empathetic and others will think I'm putting Gavin down. The reality is that I'm voicing my frustrations over a situation I'm currently existing in. Speaking about my feelings, has absolutely no impact on whether or not I love…

0 Comments
February 19, 2017
Read more about the article The Autism Dad blog made #4 on the list of top 50 #Autism Blogs
Awards

The Autism Dad blog made #4 on the list of top 50 #Autism Blogs

I wanted to take a minute to thank Feedspot for an amazing honor. They've indexed thousands of Autism related blogs and pulled to top 50 for their list. I've been selected and placed in the #4 spot. This is pretty amazing for me and I know I'm in excellent company. Below is the quote from Feedspot on how they ranked everyone. Thank you Feedspot for this honor. :-)      The Best Autism blogs from thousands of top Autism blogs in our index using search and social metrics. Data will be refreshed once a week. These blogs are ranked based on following criteria Google reputation and Google search ranking Influence and popularity on Facebook, twitter, and other social media sites Quality and consistency of posts. Feedspot’s editorial team and expert review  …

0 Comments
February 3, 2017
Read more about the article I don’t even know what day it is
My thoughts

I don’t even know what day it is

The boys have had a pretty good day so far. They were so quiet that I was able to grab a short nap while they were playing Xbox together. We're on the final day of our four day weekend, and it feels more like a Sunday than a Monday. I have to eventually run out and grab a few things the boys will need for school this week, but aside from that, it's just a lazy day. The week is going to be thrown off because it does feel like a Sunday and that will keep me a day behind throughout the week. It's weird how that works but this kind of weekend always throws off my internal clock. I'm hoping to have a peaceful afternoon and evening. We need to…

1 Comment
January 16, 2017
Read more about the article Why #Autism Parents sleep when they can
My thoughts

Why #Autism Parents sleep when they can

I slept for a couple of hours after dropping the boys off at school and feel so much better now. There were a million things I needed to get done this morning, but none of that was going to happen without at least some sleep. This morning's nap puts me at a total of only four hours of sleep but sometimes I get must less and so I'm grateful for what I can get when I can get it. Gavin and Lizze are both sleeping right now, and that gives me some time to myself to get some writing done. Writing helps me to clear my head, deal with my depression and also provide a better life for my family. In other words, it's very important to me. One of the…

5 Comments
January 12, 2017
My thoughts

A Desperately Needed Break

The boys are at their Grandparents tonight and Lizze, and I have the night to ourselves. Before the kids left, and it was a rougher day. It wasn't the worst ever by far, but it was tough nonetheless. Lizze and I are just taking it easy tonight. We picked up some dinner and watched some Netflix. I worked on some blog/work related things and Lizze worked on some art stuff. It's nice just to have some peace and quiet. Truthfully, TV was just some background noise. As weird as it sounds, the house was too quiet, and TV was just the right amount of background noise to make us feel more comfortable. We worked on our respective projects and just talked. It was a relaxing night. Nights like these help…

2 Comments
December 30, 2016