Gavin’s vision is blacking out 

On Thursday, we will be heading to Akron Children's Hospital for Gavin. He will be going for another, more detailed eye exam. His last appointment was simply to get his new glasses. This particular appointment is going to try and identify why he's experiencing blackouts in his vision.  Gavin's been experiencing periods of time where his vision goes black and he can't see anything.  He rarely tells us in the moment, but rather later on in the day or even days later. We don't know if this seizure related or something else.  We're hoping to either identify or rule out something physically being wrong with his eyes. If everything checks out, we're probably going to need neurology again and have another EEG done. 

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The Final Tuesday 

It's a new day and the final Tuesday of summer break. We're focusing on back to school preparations today. The first thing we have to do is fashion show, which is when we double check to make sure clothes fit. The boys hate doing this but it's a necessary evil.  I want to get this out of the way as soon as possible, because we have to likely get some things for Emmett.  Anxiety for the new school year is already setting in and while we're trying to ease into a new routine but it's always a rough change. 

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Review: How the Thermo Smart Thermometer made our lives easier (@WithingsEN)

A couple months ago, I received a Thermo Smart Thermometer from Nokia. The idea was to put it through the ringer and see how it works. Our case is a bit unusual because Emmett, our youngest, has a rare fever disorder. Tracking his temperature throughout the day has been a nightmare. https://youtu.be/5Wtgn7mfZvU When the Thermo arrived, I was really excited because I'm a techie, but mostly I was desperately hoping that it would make life a bit easier. You don't realize how complicated something as simple as tracking fevers can be when you have to do several times a day, every single day. [foogallery id="64700"] You can see in the above gallery, the Thermo is a relatively small device that fits very comfortably in your hand. There's only one button…

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Elliott’s first day of occupational therapy 

Elliott did awesome at occupational therapy. We've never had this particular therapist before but she was awesome as well. Elliott is so timid when it comes to anything that takes his feet off the ground, and she worked with him to get through some of it.  She said that he absolutely made her Monday and that he's the perfect kid to have as the last patient of the day. ☺  I think Elliott had a good time and great workout as well. Unfortunately, he'd going to be super sore in the morning but I keep telling him it's the good kind of sore. lol  [foogallery id="64672"]

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The results of my doctor’s appointment 

My appointment has come and gone. It was a mixture of good news and news I was expecting.  First of all, my bloodwork was better and she's happy with it for the most part. There's room for improvement though and I'm okay with that. What's life without goals.. ☺  Next comes the bad-ish news I was expecting. My weight is a problem and so is my blood pressure. Taking care or my weight will likely have a very positive impact on my blood pressure.  I go back in February. If my weight and blood pressure haven't improved, I'll have to go on medication.  I'm not going to let that happen.  As always, my doctor was super cool about everything and wasn't judgemental at all. She's concerned and so am I.…

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I’ve decided not to be nervous

Elliott and I are chilling in the waiting room at my doctor's office. We made it a few minutes early and the room is packed with people. I've decided that I'm not going to be nervous. I'm going to march in there and own my body.  I'm going to learn from my mistakes and focus in what I need to do better.  It's important that I give myself credit for what I'm doing well and continue moving forward. ☺ 

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Another crazy busy week ahesd

This week is going to be crazy busy. On top of work related things, I have to get my family to roughly eight appointments before Friday. School begins on Thursday, which is ridiculous if you ask me. Why start the school year on a Thursday?  Something else that's happening this week is the planning stages for our trip to Florida. There's so much to consider when planning out the logistics, as it's going to be a long drive, over fifteen hours to be more precise.  Flying isn't an option because we don't know how Gavin's body would react to the pressure changes, plus he's terrified of being off the ground.  I'm going to begin working in this today and I'll let you know how it goes. 

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It’s a big day for Elliott 

While it true that I'm dreading part of today, there's also something I'm super excited about. After being off for a couple of years, Elliott is finally making it back to occupational therapy.  Between lack of therapists and waiting lists, it's been quite awhile since he was last in this therapy.  I'm stoked that he will be starting up again today. He's only going twice a month but every little bit helps. Not only are they working on strengthening, balance, coordination, but also secure social skills.  It will do Elliott some good to be back at it and hopefully, this will help to midogate some of his challenges. ☺ 

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