Special Needs Parenting Archives - Page 213 of 520

I’m really going to have to buckle down today

We've got a busy day tonight and our success depends on whether or not Emmett makes it to school. It's more important that we get out the door on time because we have to have Gavin's bloodwork done and get Lizze to a doctors appointment before 9 AM. I try to be positive but I have a bad feeling about how things are going to go with Emmett in the morning. After all of the morning chaos, I have to get Gavin to Social Security for his review. I'm hoping beyond hope that they don't want to have me discuss Gavin's status in front of him. I like to include Gavin in his own care when it's appropriate but talking about all the problems he's having isn't something I want…

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February 6, 2018

We might be approaching the end of the road

This fever flare is driving me nuts. I know it's worse for Emmett but I'm still having a really hard time getting him to eat anything. He's had a bit of yogurt, some pudding and I just got him to eat some brown rice. The brown rice was a pretty big surprise actually. The problem is that he's not eating much and there's very little that we can pack in his school lunch and be sure he'll eat any of it. He's not being picky, he's just in a tremendous amount of pain. He's getting a new sore on his cheek and that's probably what's keeping him from eating now. He's been complaining about it today. Thankfully, that's one of the only new sore he's presented with for a couple…

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February 5, 2018

Emmett John / My thoughts

He’s not a typical kid and this isn’t a typical situation

I'm concerned that Emmett is going to be very difficult to get to school in the morning. His mouth sores are getting better but he still has a big one on the inside of his lip and it hurts me just to look at it. Poor Emmett is still in pain but we're sending him to school and as of bedtime, he's okay with that. He was worried about his pants but we told him he can wear his old pants. Shirts won't be too big of an issue and neither will his crocs. The big issue, or rather the two big issues will be his lunch and his makeup work. He's very worried about what he's going to eat for lunch because a lot of things still hurt his…

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February 5, 2018

My thoughts / Reviews

(Review) Adjustable Pillow by @eightsleep

This brief review is sponsored by Eight Sleep. They sent out their adjustable pillow for me to review and share my honest thoughts on. The opinions expressed are my own. https://youtu.be/DSLb_pISG8A Take $25 any Eight product, including smart mattresses, adjustable pillows, organic bed sheets and more! Use code SLEEPAFF25 Order Now The other day, FedEx dropped off a package from Eight Sleep. I've been anxiously awaiting for this box to arrive because it contains a new adjustable pillow from Eight Sleep. It's been a long week and I didn't get around to actually removing the pillow from its clear packaging until last night. I had originally planned on taking pictures of the pillow before trying it out for the night and finishing up this article. That plan changed because the…

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February 4, 2018

Inspirational Posts / My thoughts

Autism Parents – You MUST be selfish

We all want to give our kids the best, why not start with giving them the best of ourselves.

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February 3, 2018

My thoughts

Teamwork is the only reason we survive

Lizze is still under the weather with a stomach thing and was unable to go with us to celebrate my Mom's birthday last night. She needed her rest and the best way to do that is without the kids bringing down the house around her. lol The boys and I had a lot of fun last night, a little too much fun actually. Holy crap were they bouncing off the walls both while we were there and when we got home. After a couple of hours, I had all I could take and we mad a graceful exit. There ended up being a ton of people present and that gets the boys overly excited. Bedtime was a serialistic nightmare but they did finally go to bed. Lizze didn't sleep well…

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February 3, 2018

Gavin / My thoughts / Schizophrenia

Sadly, he’s hearing voices again

Gavin had a pretty good day, at least physically. On his first full day of being an adult, he spent a large part of it hearing voices. Gavin's was officially diagnosed with Schizophrenia a few years ago. This is far from the first time Gavin's heard voices. In fact, he sorta lives in a perpetual hallucination. He has friends that only he can see and he goes on dangerous missions with them on a daily basis. These are the typical voices he hears. Unfortunately, what we're seeing now is that he hears us talking to him when we aren't. He's constantly keeps finding us because the says we called for him. I'm not sure what's going on with this but it's not something that's been very common over the years.…

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January 20, 2018

My thoughts

Trying to get exercise while doing chores around the house

I'm pretty proud of myself. Our dryer has been broken for a couple of weeks now. I tore it apart a week ago and discovered that it was simply the belt that was broken. I was able to order one on Amazon and it finally showed up today. Emmett, Gavin and I went into the basement and replaced the belt. It literally took less than five minutes. Gavin and Emmett each held a part in place for me while I put the new belt on. Emmett even used his little tool kit to secure all the screws again. They were both a big help and we are finally able to use our dryer again. ☺ I hate doing laundry but I'm excited to get the floors in as I take…

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January 20, 2018