special needs children Archives - Page 159 of 172

Gavin / My thoughts / Parenting Frustrations

It can be so exhausting to be patient with your special needs child :(

It's heartbreaking but I have to reel in some of Gavin's independence:( Gavin's current capacity is such that I have no choice but to start taking away some of the independence he has earned over the last year. I've said a few times recently that I'm seeing regression once again. This is kind of the status quo for Gavin. He will do really well and then begin to regress again. Clearly this is an ongoing issue. For most of the last year, I've had Gavin responsible for his medications, for the most part anyway. He would take them when it was time and most often remembered to do so on his own. Last night he informed me that he had not taken his inhaler while at his Mom's house because…

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August 23, 2015

My thoughts

I’m soooo tired this morning

I didn't get more than about 2 hours of sleep last night. My brain just wouldn't shut off and when I finally did fall asleep around 3am, Emmett was up at 4am. Tired doesn't even begin to explain how I'm feeling this morning. I'm going to try to get a nap but I don't know if that will be possible...

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August 23, 2015

Divorce / My thoughts

It’s gonna be emotionally difficult for me today

My birthday is on Monday but because my family is so large, we sorta lump all the August birthdays together and celebrate on one day. That day is today.. There's a great deal of emotion surrounding this me and I don't know if I'll be able to hold it together. I know life goes on and I have a lot of life to eventually get to but it's hard. I don't know if this makes sense to anyone but I'm gonna try anyway. I'm not hung up on my wife. I don't miss her, at least who she is now and I know from the bottom of my heart, that the boys and I are better off. I know that. At the same time, I feel this tremendous loss that…

7 Comments

August 23, 2015

Elliott / Gavin / My thoughts

I’m frustrated with Gavin tonight

I'm frustrated with Gavin for a couple of reasons. Elliott informed me that the boys were picking out snacks while they were at their overnight visit. Gavin picked out some hazelnut cookie stick things. Elliott didn't realize that they were Gavin's at the time and asked if he could have one. He was told that they were Gavin's and he would have to ask him. Apparently, when Elliott asked Gavin if he could have one, Gavin told his Grandma that Elliott was allergic to hazelnut and couldn't have one or some thing like that. That was simply not true. Elliott is not allergic to hazelnut and never has been. He's only been allergic to almonds but for awhile, we had to avoid tree nuts all together. That restriction though, has…

15 Comments

August 22, 2015

My thoughts / Visitation

The boys are home from their overnight visitation

The boys just got home from their overnight visit with their Mom. So far so good. 😀 Everyone seems to be doing okay and I haven't heard any complaints. Emmett walked in the house, found Cleo the cat and immediately curled up with her on the couch. He's unusually quiet but he's also still not feel well either. It's going to be a quiet night. I don't think we're going to do anything but chill-out. I'm liking the fact that no one is crying or complaining about how things went. I know their Mom was not feeling well so this may have been more of a weekend with Grandma. Regardless.. I'm happy that they're happy.. 😀

3 Comments

August 22, 2015

Cleveland Clinic / Gavin / Thoughts and Prayers / YouTube Video

Prayers Needed: Gavin may have Jalili Syndrome

The video below will provide more details but if you just want to know what's going on, here's the deal. I received a phone call yesterday from The Cole Eye Institute. This is the premier eye center at The Cleveland Clinic. It was a genetics counselor working with one of Gavin's precious doctors. Gavin's been to The Cole Eye Institute a few times for very detailed exams. These exams were looking for neurological issues that would hopefully give us a direction to go in. He eye exam was fine but they noted issues with his teeth that we already knew about. Gavin is lacking enamel on some of his teeth and has had to have metal caps installed as a result. http://youtu.be/W6OMwtqw99I They took detailed pictures of his teeth as…

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August 22, 2015

My thoughts / Visitation

It was a peaceful evening

I had a pretty quiet evening without my kids being home. The only place I went was to Chipotle to get a burrito for dinner. My birthday is on Monday and we probably won't be doing anything special, so I thought I would treat myself to dinner tonight. You can never go wrong with Chipotle. 😀 Anyway, I haven't heard anything from the boys, so I'm hoping that means they're having a good time visiting their Mom. I have nothing planned for tomorrow either, aside from sleeping in. 😉

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August 22, 2015

My thoughts / The Lighter Side of #Autism / YouTube Video

The Lighter Side of #Autism: Fun and Exercise

I shot this the other day while walking the track with my kids. Mr. Emmett was not in the walking mood. He was in a riding on Daddy's shoulders for as long as he can get away with it kinda mood. 😀 Hey, I was looking for exercise and adding another 50 lbs or so to my shoulders was exactly that. lol Emmett ended up walking half and riding half of the 1.5 miles. https://youtu.be/y0-uIlGfsBE

6 Comments

August 22, 2015