SPD Archives - Page 167 of 173

Emmett will take on a pretty major change today

We have a sorta major schedule change for Mr. Emmett today. We've switched over to the school schedule for his physical therapy today. Normally he goes to therapy on Wednesdays at 1pm but with school coming soon, we needed to make the switch to a more sustainable school schedule. Therapy will be on Tuesday afternoons now and he'll have to be pulled from school early, once it starts. That being said, it will be at the end of the day and shouldn't disrupt anything significant. The school is amazing at working with me so I know everything will work out. The only fly in the ointment, so to speak, is the physical change from one day and time to another. Kids with Autism tend to dislike change and Emmett is…

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August 11, 2015

Elliott / Lost a Tooth

Guess who lost another tooth?

I forgot to tell you folks that Elliott lost another tooth the other day. He's missing his two front teeth and now two on the bottom. 😁 He's been handling this really well. He normally panics at the sight of blood but he pulled the tooth out when it was ready, all by himself. 👍

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August 11, 2015

Elliott / Today's Victory

Today’s Autism Victory: Walking a mile in his shoes

I want to take a few minutes and share a pretty big victory we celebrated tonight. The world at large probably won't understand the significance of something like this but I know at least some of you will. Elliott struggles with extreme anxiety. He takes medication to improve his quality of life but it doesn't really help. The boys and I walked the track tonight. Elliott wanted to explore the banks of the creek but I had to tell him no because we were racing the weather and I didn't want to be caught in the rain. Elliott wasn't happy with that and kept pushing and pushing to be allowed to go. My answer didn't change and he was getting really frustrated. I stood my ground because I knew…

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August 11, 2015

Cleveland Clinic / Gavin / Rheumatology

Gavin makes his triumphant return to the Cleveland Clinic next week

Something I'm don't know if I've shared before is that Gavin has connective tissue problems. Apparently, his Mom has a connective tissue disorder but that was diagnosed after she left and so I'm relatively in the dark on that. Gavin is extremely hyper flexible. Some of the things he can do are actually cringe worthy and hard to watch. I've known about that forever and that's one reason why he was in OT/PT and is currently back on the waiting list. The problem he's been having recently is that his shoulders and hips pop out. It's very painful and just sorta happens randomly. He could be running around and be just fine but he could have his shoulder or hip pop out while climbing out of bed in the…

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August 10, 2015

Emmett John / My thoughts

I’m having a really hard time getting my son with #Autism to eat

As a father to 3 boys with Autism, feeding issues are nothing new to me. I've faced those challenges almost 3 times a day for 15 years. Typically this envolves making a different meal for each child and then remaking it several times, until it's sensory acceptable. It's a long and often wasteful process but kids with these problems with sooner starve than eat something that's offensive to them in sensory level. Of my 3 boys, Emmett is by far the most sensory sensitive and as such, the most challenging to feed. Lately, it's getting more and more difficult to ensure he's eating. It's frustrating for both of us because I worry about him losing weight and he truly is hungry. What ends up happening is whatever I do…

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August 10, 2015

My Crazy Life

I awoke to screaming this morning

It was a little bit after 7am and Elliott and Emmett were already awake. They had gone downstairs and we're playing the Xbox. That's not a big deal but apparently, there was a disagreement over something. That disagreement led to Emmett melting down and screaming at the top of his lungs. Of course, in the moment, I had no idea what was going on and so I awoke in a panic, only to find that everything was indeed okay. No one was getting stabbed or shot. Someone just wasn't getting his way. Let me tell you somethine. That's not the best way to be woke up, especially on a Monday. lol I put an end to the problems they were having and shut the game off. Since then, everyone's…

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August 10, 2015

Inspirational Posts

The toughest part of being an #Autism parent

Being a special needs parent can be frustrating for a multitude of reasons. I bet if I asked random people, what they thought the hardest part of being a special needs parent was, there would be some pretty interesting answers. In the almost 15 years I've been a special needs parent, I've fought many battles. Some of those battles were school and IEP related. Some were insurance related. Let's be honest, many of them were insurance related. Battles were fought just to get my kids to eat a meal or wear clothes. There's the stress, anxiety, meltdowns, overstimulation, communication challenges, loss of friends, a complete implosion of your social life and a lifetime without sleep. I've faced off with each one of these challenges and more, on countless occasions, as…

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August 10, 2015

My thoughts / School

School is just around the corner and I’m ready for it

The boys have about 20 days left of summer break. On September 1st, they will be returning to the classroom and frankly, I'm getting a bit anxious for that to happen. I love having the boys home but since there's only one of me and three of them, it's proven to be quite taxing. I'm ready for them to go back. I mean, I'm ready for them to physically go back. I still have a ton of shopping to do as soon as I can. Summer break is a mixed bag for a special needs family. I've found that it's much, much harder to take care of myself or anything else for that matter, when I'm taking care of the boys 24/7. While they're in school, they get to socialize…

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August 9, 2015