Read more about the article How far would you go to save your child’s life?
My thoughts

How far would you go to save your child’s life?

ABC News put out an article today about a man named Brian Randolph of South Lyon, Michigan.  He was arrested and charged with armed robbery and bank robbery.  Apparently, on August 12, 2015, Randolph entered the Vibe Credit Union in South Lyon, Michigan and handed the teller a note demanding the money. He also indicated to the teller that he had a shotgun hidden in his clothes although never actually showed the teller because he was in fact, unarmed.  After he was arrested, he explained that he robbed the Credit Union out of desperation. As it turns out, his 1 year old daughter Brailynn Randolph has cancer, more specifically, retinoblastoma.. This is cancer that forms in the eyes.  She's receiving chemotherapy every four weeks and due for her next treatment…

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August 27, 2015
Read more about the article It was a really rough visit for the boys and they came home early 
Divorce / My thoughts / Visitation

It was a really rough visit for the boys and they came home early 

Last night the boys went to have dinner with their Mom and Grandma. It's  a two hour break, every other Wednesday and it was a disaster. The boys were home about an hour after they left. Emmett was having a rough day.  For some reason he was really, really anxious before he even got into the car. He was overwhelmed and already a donkey on the edge.  Grandma and I calmed him down and he ended up going off without a issue after that.  At some point, Emmett got upset again and wanted to come home.  They went to visit nearby family and Gavin ended up kneeling in dog pee. Needless to say, he was none to happy about that and so he wanted to come home..     I was…

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August 27, 2015
Read more about the article Someone killed my neighbors dog :(
My Crazy Neighborhood

Someone killed my neighbors dog :(

I was letting Maggie out tonight and one of my neighbors came over and to talk. It was well after midnight so I knew something was wrong.  He informed me that his dog Sam had been killed. 😔 Sam was a really sweet dog, puppy rather.     I'm saddened to say that someone threw ground hamburger packed with broken glass into their yard, Sam ate it and later, passed away.  The vet found the ground hamburger and broken glass during the autopsy that was required for the police report.  This neighborhood is just horrible and I'm so sorry for my friends loss. I'm horrified by what that poor dog must have gone through. 💔 He wanted to make sure that I walked through my yard before letting Maggie out, so…

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August 27, 2015
Read more about the article The boys are off to dinner and I’m on my own
My thoughts / Visitation

The boys are off to dinner and I’m on my own

Yesterday took a great deal out of me and I'm dragging today. It's been a relatively quiet day here and for that I'm grateful.  Skipping ahead until now, the boys have just left to have dinner with their Mom and Grandma. Emmett was a little bit upset because he wasn't sure if he would like where they were going but we told him that he wouldn't go hungry and that Mommy/Grandma will figure it out for him.  Outside of that, it went off without a hitch and that makes me feel really good. 😀 I won't really have down time tonight because I have to go to the grocery store and run a few errands before the boys get home. I do get to go without them so I suppose that…

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August 26, 2015
Read more about the article Here’s what happened at the Cleveland Clinic
Cleveland Clinic / Gavin / My thoughts

Here’s what happened at the Cleveland Clinic

I'm going to do my best to explain what happens yesterday at the Cleveland Clinic and I'm going to try and make this shirt and sweet.  For starters, Gavin's okay.  The eye exam part of his appointment showed no issues in structure but functionality would require further testing. That would only take place if the genetic testing comes back positive.    They took detailed picture of his teeth and eyes to further document where he is currently so changes would be easier to track.  Right now we just have to wait for the results of his DNA breakdown.  I should also add that this is all done free of charge because Gavin is now part of the a research project trying to learn more about this extremely rare disorder called…

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August 26, 2015
Read more about the article I woke up to screams for help
My Crazy Life / My thoughts

I woke up to screams for help

I know I'm a bit behind on updates for yesterday but I'll catch up later today. This has been the longest day ever or at least in recent history.  There were things that went very wrong and things that quite frankly, were absolute blessings. More on that stuff later though.     I've been working on rebuilding the Guardian Locate website from scratch. It's a process that's can be quite tedious and frustrating but needs to be done.  Anyway, I went to bed about 1:30am and I feel like I was out before my head hit the pillow.  Next thing I know, I hear screams for help coming from Elliott and Emmett's bedroom. This was the kind of scream that made me think someone had come into the house and was…

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August 26, 2015
Read more about the article God grant me patience because I’m gonna need it today
Cleveland Clinic / Gavin / Jalili Syndrome

God grant me patience because I’m gonna need it today

We finally made it. We arrived at 10:30 am for a 10:00 am appointment. It should take about an hour to get to the Cole Eye Institute and I gave myself an hour and a half to avoid being late but the drive took 2 hours.   Between potty breaks, getting pulled over, road construction, getting off in the wrong exit and more construction, it took an extra hour.  I'm not in a really good place at the moment and my stress level is approaching stroke levels.  Happy thoughts.  I'm going to think happy thoughts and pretend we aren't late and everything went perfectly. That's all I have left to do at the moment.    

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August 25, 2015