Good News :) 

Gavin seems to be doing a little better now.  The meds have kicked in and he's moving around without wanting to puke his guts out.  This is good news, as the title to this post states.   I'm making him take it easy for now because I don't want him to over do it and end up not feeling well again.  We really have to be careful when it comes to his health. Hence fragile health.  We also have to do his IVIG infusion today and I'm hoping that goes better this time around.   For now, I'm just grateful he's doing better and is no longer in any pain or discomfort. ☺ 

0 Comments

Gavin isn’t doing well this morning :(

I was up really late with the two youngest boys and woke up to Gavin doubled over in pain, feeling like he was going to vomit.   It's really frustrating to try and get information from Gavin about how he feels because that's a skill known as expressive language and Gavin is sorely lacking in that department.   All we can do is try to piece together what's going on based on what we see and how he's acting.   As far as this morning goes, I gave him his anti-nausea medication and Lizze got him something to help speed things alone.  Part of the issue is that Gavin may be um.....backed up. We addressed that and we'll see if that helps.   Back to the frustrating side of things.…

0 Comments

Two of my three kids with #Autism are still awake at 2am

Not long after my wife and I went to bed, both Elliott and Emmett woke up and can't go back to sleep. Rather than battling to keep them in bed and ultimately losing, I opted to eventually just camp out in the living room.  It's honestly, the best chance I have at getting them to go back to sleep. Getting them to go back to sleep means that I can go to sleep. Sleep issues like this are very common with kids on the Autism Spectrum and subsequently their parents as well.  It really does make life so much more challenging.

0 Comments

I’m worried about the new school year for a couple reasons

The boys start school this week.  They're actually starting much earlier than they have in previous years.  Normally, they begin school around the second week in September, give or take. We're going to start with the positive side of things first and then get into what has me worried. I'm ready for them to go back because I really need the time during to the day to help make this site turn a profit (ads etc).  I also need the time to focus on my health. Lizze and I are going to begin walking in the morning after dropping the boys off at school. I'm so not happy with the my weight and it's certainly not helping with my depression. I think it will be Lizze, my Mom, Gavin and…

0 Comments

I think the cookout went okay

We got home a couple hours ago from our first family cookout/get together since Lizze moved home. I think all things considered, it went pretty well.  It's going to be a work in progress as we move forward but move forward we must.   The boys had fun, although our stay was almost cut really short because Gavin had really bad cramps and nothing could provide him with relief.  He said that it was hurting before we left but he thought there might be pop at the cookout and didn't want to ruin his chances of having some. We do allow him to occasionally have something other than the water his autonomic specialist has told him to consume.  He's only supposed to drink 2.5 liters of water per day and…

0 Comments

This is the last thing on our reunification bucket list

We decided to arrive a bit early to this cookout because Lizze felt more comfortable being the first. It makes total sense because we wouldn't be walking into to a house full of people. They will be walking into a house with us already in it.   It was my idea and I thought this might help just a little bit.   This is really the last thing on the list to check off, in regards to the reunification of my family.   This will hopefully bring the rest of the family into the fold and we can all move forward together.  I'm both excited and nervous, all at the same time.  

0 Comments

I so totally need a nap

I'm totally dragging today. I feel like I haven't slept in a really long time.   We've got a big day ahead of us and that's probably why I didn't sleep well last night. I'm stressed out and worried about how everything is going to go today. I so totally need a nap. 

0 Comments

This is what @vivintgivesback enables me to do

I was talking the other day about Gavin's bad reaction to his IVIG infusion. He got sick and I needed to be able to keep an eye on him without being in the same room.   Thanks to the Vivint Gives Back project, I've been able to provide my family with some amazing technology, that not only helps to keep us safe but also promotes peace of mind for both my wife and myself.   The picture above is an example of what I'm talking about.   I had mentioned in a previous post, that I was going to leave my tablet on, with the Vivint app running.  This provided me with a live feed into Gavin's room, so I could monitor him from my room.   I also setup an alert…

0 Comments