As we predicted, the schools across North East Ohio are closed today because of the dangerously cold temperatures. I have a feeling that this snow day will extend into tomorrow as well because it's not supposed to get any warmer. To be honest, as crazy as it may sound considering how difficult the kids are, I'm glad they're home. If you're stuck in this same polar vortex that we are, please stay safe and warm... ☺
Emmett had a tough time falling asleep last night. He came downstairs and sat with us for a little bit before Lizze took him back to bed. We weren't sure if he was going to fall asleep in his own bed or move to ours at some point. When Lizze and I went to bed, we found him fast asleep in his own bed. Awesome sauce...... ☺ I wouldn't be surprised if we we learn that he stayed in his bed because our room was too dark but who cares. This is major progress and what makes this so awesome is that he was able to work through this.. Great job Mr. Emmett..... ☺ 💙
We had some things go very right today and we had some things present us with challenges. I feel like overall the day was a success, and not just because we physically survived. (see Thank God for mornings like this and read all about it) The main topic of this entry is centered around the phone call I received from Gavin's Urologist's office at the Cleveland Clinic. They were following up on Gavin's emergency room visit yesterday. I think that's a cool thing to have a doctor's office follow up like that without being prompted. It shows they care and that's why we love the Cleveland Clinic. I spoke with a nurse who wanted to know all that happened and everything the ER doctors did while we were there. We spoke for…
Yesterday was a tough day for me on many levels. I experienced intense feelings of fear, panic, disbelief, frustration, exhaustion, anger, resentment and lots of guilt. The long day turned into a long night because Elliott woke up in pain and I'm pretty sure it was the result of the way he was sleeping. He felt better after moving to the couch and falling asleep while I played with his hair. Having barely survived that, I was so incredibly thankful for how well the morning went. The boys were slow to get moving but once they did, the morning went well. Emmett did his crocs and socks without much problem because he knew that once he got to school he could put on the super fuzzy slippers I bought him…
Update: I was so frazzled when writing this that I forgot to thank all of you for all the love, support, thoughts and prayers that were sent our way today. It actually means a great deal to us. ☺ There are times I wish I could just speak to my readers directly because it would so much easier to talk than write. Sometimes I struggle with putting words to my emotions and frankly, that is why I don't write more than I do anymore. I'm overwhelmed and lacking the energy to say all I need to say. Please bare with me as I try to explain what happened with Gavin today and do so in a way that makes sense. It's best I start at the beginning. I woke…
We're waiting to go back, but I wanted to take a minute and ask that you keep Gavin in your thoughts and prayers. Currently were at the emergency room because Gavin has been experiencing something going today that could end up being very serious, especially with a compromised immune system. Essentially, Gavin's been peeing blood today, and we aren't sure why. Gavin's story has been shifting today, and so we aren't entirely sure what's going on. At first, we thought he was popping blood and so we called his doctors to find out what to do. Then later on in the morning, Gavin informed us that he hadn't pooped today at all and that he was peeing blood. He didn't think it was important enough to tell us…
We had to pick the boys up from school and then run to the other side of town because Lizze had a doctor's appointment. While Elliott's in a bad mood because he's hungry, he was able to deliver piece of really good news. When I asked him how his day was and if there were any problems, he said good and no problems. In other words, it sounds like he had a bully free day. I can't tell you how much I needed to hear something like this today. I'm so relieved that our efforts have produced a positive outcome, at least for now. ☺
We had a really difficult morning because Emmett would not tolerate shoes or socks once again. I went last night and tried to find new socks that he might be more comfortable with but he wouldn't even try them on. This morning however, he was finally able to put on one of the pairs of new socks but would not tolerate any type of shoe over top of them. After about 90 minutes of exhaustive effort, we finally got him to wear his slippers. He wasn't happy about it but it happened. The battle to reach that point was horrible. The screaming was overwhelming for us but the whole thing was beyond overwhelming for Emmett. This thing is heartbreaking and I don't know what else to do. Nothing works. …