Sensory Archives - Page 354 of 471

The weird things my son with #Autism says

The things I talk about in this post are not meant to be disrespectful for Gavin. If you're an Autism parent, you'll probably have at least some experience with your kid saying something weird in front of someone in public. They don't mean anything by it. It's just those pesky, awkward social and conversational skills. We've all been there and it's okay to talk about these moments because if we don't have a sense of humor, we'll go crazy at a much faster pace. It's a sign of a good day when I've made it this far without collapsing from exhaustion. 😁 The boys got off to school without too much headache and we really do appreciate the effort they put in to make that happen. Not having to deal…

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February 24, 2017

Emmett John / My thoughts / Sensory / Shoes and Socks

My son’s sensory issues totally kicked my ass today

Mother of God, I didn't think we were going to survive this morning. Everyone was in a great mood and that's awesome. Elliott and Emmett were getting along and there wasn't any fighting whatsoever. Let me tell ya, that almost never happens. All of that awesomeness ended the moment it was time to put shoes and socks on. Our mission of helping Emmett tolerate his shoes and socks began about 7:15 am and we finally arrived at the school at 9:00 am. It took almost two hours to work through the sensory issues this morning. There was so much screaming and panic over how his socks felt funny, I wouldn't be surprised if my neighbors, three doors down could hear him. We came so close to throwing in the towel and…

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February 23, 2017

Inspirational Posts / My thoughts

Why #Autism Parenting blogs are SO important

There are always those people who don't understand or misunderstand the purpose of this site or my writing style. I wanted to provide some insight into the how's and why's because I've received a large influx of new readers and I'd like everyone to understand why I do this. I'm connecting with quite a few families that are just beginning their Autism journey. They're looking for a path, and I'm able to help provide them with a place to start and sanity as they move forward. When people are just beginning this journey, they feel very much alone. There are feelings of isolation and that no one understands. While some may not understand this, Special Needs parents find comfort in knowing they aren't the only ones depressed, frustrated, overwhelmed, imperfect,…

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February 22, 2017

Gallery / My thoughts

Pictures from our busy #Autism family day

I wanted to share some of the pictures from today. Included below are pictures from speech and OT to fun with our ferrets and running errands. These simply help give you some insight into what goes on in a typical-ish day for my Autism family... ☺

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February 22, 2017

Common Variable Immunodeficiency / Gavin / General Update / Immunology / IVIG Infusion

Major Update on Gavin’s missing medications

Throughout the day, I had about half a dozen different conversations in regards to Gavin not receiving his IVIG medications and supplies. I spoke with his doctor, his insurance case manager and the head pharmacist at the pharmacy we want to switch to for his supplies. Let's get this out of the way first. Gavin's doctor's office was finally able to get things straightened out with our current supplier. The supplier appears to be who dropped the ball on this one. Setting aside blame and focusing on what matters most at this very moment. I can share that Gavin's medications have been reordered. They should be arriving on Wednesday. How am I going to prevent this from happening again? The simple solution to fix this is going to be complicated…

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February 21, 2017

Gavin / My thoughts

My son is missing his critical medications for the month

A large part of my stress load today is the result of Gavin's IVIG supplies never showing up. I was contacted on Friday by the supplier who said that Gavin's shipment is delayed because they have been unable to get refills from the doctor. They were going to fix this yesterday but that never happened. I spoke with Gavin's doctor today and they have never been contacted for a refill or it would have been done immediately. I believe them because we've never had a single issue with them in five or six years. The doctor's office also stated that Gavin current script covers him through May of this year and he doesn't even need a refill yet. They are currently working to resolve this and have checked in with…

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February 21, 2017

Emmett John / My thoughts / Sensory / Shoes and Socks

I’m heartbroken over forcing my son with #Autism to go to school today

I woke up exhausted, but in a good mood. That mood carried me through until it came time to get Emmett in his shoes and socks. Lizze worked for quite some time with him on being able to tolerate his shoes and socks. Unfortunately, despite her best efforts and massive amounts of patience, we never resolved anything for more that a few minutes. Emmett was okay with things until he got in the car and I began making the drive to school. At this point he's freaking out, screaming and ripping his shoes off again. This lasted the entire trip to the school and I wasn't in the best place to deal with this. When we got to school, I had to park the car because he wouldn't get…

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February 21, 2017

My thoughts

We have a problem that needs to be resolved today

If I had to describe how I slept last night, I would probably say shitty. I had a really hard time getting comfortable and would wake up because my back was killing me. Then at some point, both Elliott and Emmett took turns waking up. Despite a rough night, I'm actually in a pretty good mood. Lizze has an appointment this morning and Gavin and I will be walking while she's there. We have a full day of appointments ahead of us today, as well as some problems to overcome. The biggest one being the fact that we haven't received Gavin's IVIG infusion supplies yet and were unable to perform his infusion yesterday. Resolving this will be the priority today. I hope everyone is having a decent Tuesday thus far.…

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February 21, 2017