Sensory Archives - Page 217 of 471

I wish I could do something to help him

The morning was rough. I didn't get nearly enough sleep because I was up with an Emmett who was in a great deal of pain. I let Lizze sleep and she let me sleep in, while she took Elliott to school. Teamwork... ☺ Emmett's in a good mood but at the same time, he's miserable because he wants to eat solid food. I looked at the sores on his lips this morning and it looks like there's another one popping up. I wish there was something that could be done but there isn't. This is one of those things that we don't know much about because it's incredibly rare and there's no research being done as a result. One of my readers brought up something called Magic Mouthwash. I think…

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February 1, 2018

Elliott / My thoughts

#Autism + Haircut = MAJOR SUCKAGE

Elliott was feeling better this afternoon and I took advantage of that. He was desperately in need of a haircut and he was actually willing to get one. These opportunities don't come around very often because he hates getting his hair cut. Normally haircuts are a rather nightmarish event that leaves everyone stressed out and exhausted. It's a total sensory thing and a strong dislike of change. I wasn't sure how things were going to go but I'm pleased to say that Elliott did awesome. ☺ He never complained about having to get is hair cut short. His long hair was proving too much for him to maintain and we told him that we would have to cut it short if he couldn't maintain it. This is all typical teenage…

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January 31, 2018

My thoughts

All I can do is what I feel in the moment, is best

It's been a pretty good day today. The boys seem to be doing better and I'm hoping that they can both return to school in the morning. Elliott's fever is gone and he's feeling fine now. I don't know what was going on this morning. I don't know how Emmett will be doing but he's still only able to do shakes and is avoiding all solid food. If he's still not eating, I don't see how he can go to school. This whole thing is so frustrating because all I can do is what I feel in the moment, is best. There's no instruction manual and very little in the way of guidance available to help us know what to do. 😱 At least they seem to be doing okay…

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January 31, 2018

Autism Parenting Struggles / My thoughts / School Related Issues

#Autism Parenting: Picking the BEST of the WORST options

We have therapy for the boys tonight but Lizze isn't feeling well and she will probably stay behind. It will likely be the boys and I heading out tonight. Tonight's focus is going to be on school for Elliott and Emmett. We have to figure something out because while the boys like school, they're also miserable at the same time, albeit for different reasons. This needs to be a very serious discussion about our options. I'm hoping Lizze feels up to going but but if not, we've discussed it amongst ourselves already and have reached a consensus. We both agree that the status quo isn't in the best interest of the kids. What we do about it is where we become less sure of ourselves. At this point, I feel…

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January 30, 2018

My thoughts / Reviews

Review: Is the EcoQube C a great project for kids with #Autism? (@DesignADI)

This review is brought to you by EcoQube. They were kind enough to send me an EcoQube C to put together with my kids and help raise some Autism Awareness. I'm always on the lookout for projects I can work on with my kids. I really like to present my kids with things they can do that don't revolve around video games or tablets. When I came across EcoQube, I thought it would be a fantastic project to do with my kids. I reached out to EcoQube and explained what I was looking to do. They were super excited to be a part of raising Awareness for people with Autism and their families. I was sent the EcoQube C because that's a really good place to start and it's something…

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January 30, 2018

My thoughts

I have enough to worry about already

Elliott is off to school while Emmett is home because of a fever flare. I'm really proud of Elliott because he did awesome this morning. Neither one of the boys likes going to school without the other but Elliott has been be very good about it this week. Emmett is in rough shape but is currently working on his makeup work with Lizze. I sent the school pictures of his mouth and that helps to document his absence. I've been stressed out because of these new truancy laws in Ohio but I've recently decided not to give a single shit about them. Here's the thing - these laws were not written with kids like Emmett in mind. He's living with medical issues that can often interfere with school attendance. We're…

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January 30, 2018

Emmett John / My thoughts / PFAPA

Please keep Emmett in your thoughts and prayers

I mentioned that Emmett would be home from school today. The reason for that is rather bad fever flare. I'm pretty sure it started on Saturday because that when the physical symptoms began. At first, it was just one sore on the inside of his lip, but as of Sunday evening, he's got several more. The poor kid is in a lot of pain and isn't eating much as a result. He doesn't eat enough on a good day, and this makes things worse. Right now I'm making him milkshakes and mixing SlimFast powder in for some nutrition. These are cold and numb his mouth enough that he can relax a bit. Unfortunately, it doesn't last forever, and he goes right back to being miserable. There isn't much we can…

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January 29, 2018

My thoughts

So far, I’m pushing through the exhaustion

Work has been keeping me pretty busy lately. That's never a bad thing because anytime I can improve our financial status, it's a good thing. I haven't had much in the way of work this morning, which frankly is probably a good thing because I'm so tired. I do have myself a new writing buddy. Ruby sleeps on my lap while I write and I'm not sure if that helping or hurting.. ☺ While it's true that I want nothing more than to climb back into bed, I'm forcing myself to not only keep my activity level up but also workout as well. I even using the laundry to help me reach my flights of steps for today. The more I push through this exhaustion, the more I'm going to…

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January 24, 2018