Sensory Archives - Page 215 of 471

Gavin’s not having a good day

Gavin's having a rough morning. For starters, his routine is thrown off because he's not getting his bloodwork done today. The new day for that is Wednesday's. His IVIG infusion is leaking from the left needle and that always freaks him out. It's pretty easy to fix but it's not without additional pain. It's good that he's working through it but it's not very graceful.. Lastly, and this one is driving me crazy. He has been nonstop complaining about a hang nail on his right index finger. All of the crazy things he's endured or is currently enduring, and the kid is freaking out over a hang nail. He's always been this way and they tell me it's sensory related. Back when he suffering from very serious behavioral problems, he…

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February 12, 2018

My thoughts

I suppose it wouldn’t be the worst thing in the world

It's been an interesting and even pleasant evening. Tuesday night therapy went well for everyone and while the boys were a handful at bedtime, everyone's sleeping. Lizze went to a late night movie with her Mom and I ended up falling asleep one the couch before 10 PM. I slept clean through until Lizze got home a bit after midnight. She had a great time with her Mom and I had a really quiet evening alone, which is actually nice to have every once in a while.. ☺ There's a better than average chance that we're looking at a snowday this morning. The school had already been talking about this when I was picking the kids up yesterday afternoon. I suppose a snowday wouldnt be the worst thing in the…

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February 7, 2018

General Update / My thoughts

A super quick and important update

I'm keeping this short and sweet cause we're getting ready to head out the door again. Both the boys had good days at school. They came home in a good mood and are feeling good about going back tomorrow. ☺ If I could pick only one thing to go right today, this would have been it. I'm so relieved that everything went well.. ☺ Many of you will recognize the significance of surviving a significant change to your ASD kid's routine. It's even more amazing when they not only survive it but totally own it. I'm proud of my little minions.... ☺

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February 6, 2018

My thoughts

I’m clinging to the last bit of sanity I have

The morning has been unbelievably stressful but we've been hitting the targets so far. Emmett and Elliott are at school but that didn't come easy. I had to walk Emmett into the school and briefly meet with his teachers in regards to his makeup work because that's the only way he would be comfortable enough to stay. Unfortunately, that set us back a little bit in regards to time but it was totally worth it because he felt better. I haven't even had a chance to eat breakfast because I had to pick up Lizze and Gavin from home, drop Lizze off at her appointment and take Gavin for his bloodwork. I did take advantage of being in a huge parking lot and went for a brief walk while I…

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February 6, 2018

Inspirational Posts / My thoughts

Daddy’s in timeout and it’s a teachable moment

Despite all the positive thoughts and optimistic approach to this morning, it's become a fucking nightmare. Emmett is freaking out, Elliott is not being super cooperative and Gavin won't stop talking to me. I swear to God, if I had any hair left, I'd be pulling it out right now. I'm taking a few minutes to myself right now and putting myself in timeout. I figured I would make this a teachable moment and hopefully something positive will come from this disaster. Rather than continue beating my head into the wall and losing what little sanity I have left, I'm putting myself in timeout for a few minutes. I'm someone who has a great deal of patience with my kids but even I have my limits. Without question, I've reached…

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February 6, 2018

My thoughts

I’m really going to have to buckle down today

We've got a busy day tonight and our success depends on whether or not Emmett makes it to school. It's more important that we get out the door on time because we have to have Gavin's bloodwork done and get Lizze to a doctors appointment before 9 AM. I try to be positive but I have a bad feeling about how things are going to go with Emmett in the morning. After all of the morning chaos, I have to get Gavin to Social Security for his review. I'm hoping beyond hope that they don't want to have me discuss Gavin's status in front of him. I like to include Gavin in his own care when it's appropriate but talking about all the problems he's having isn't something I want…

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February 6, 2018

Emmett John / My thoughts / PFAPA

We might be approaching the end of the road

This fever flare is driving me nuts. I know it's worse for Emmett but I'm still having a really hard time getting him to eat anything. He's had a bit of yogurt, some pudding and I just got him to eat some brown rice. The brown rice was a pretty big surprise actually. The problem is that he's not eating much and there's very little that we can pack in his school lunch and be sure he'll eat any of it. He's not being picky, he's just in a tremendous amount of pain. He's getting a new sore on his cheek and that's probably what's keeping him from eating now. He's been complaining about it today. Thankfully, that's one of the only new sore he's presented with for a couple…

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February 5, 2018

My thoughts

Why I ALWAYS expect the unexpected

The last time we spoke, I was talking about how we were going to get Emmett back to school today. I was worried about a few things that turned out not to be a problem at all. Last night, Elliott went to bed dealing with tummy issues. Emmett woke up a bit after midnight with tummy issues, while Gavin woke up about 3 AM sobbing because his head hurt and he felt like he was going to puke. Needless to say, this Dad didn't get much sleep last night and no one went to school today. I know there are tons of things floating around the school and thankfully this seems like a 12 hour bug because everyone is beginning to feel better. Lizze sent me to bed this morning…

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February 5, 2018