Sensory Archives - Page 207 of 471

He’s NOT faking this

Emmett isn't feeling well again this morning and rather than encourage him to go to school and at least try to see if he'll feel better, we're keeping him home. The main reason we're keeping him home is because we'd have to pull him out anyway for his appointment this morning. I don't know what time his appointment is because I haven't heard back yet but I'm supposed to hear something within the next hour. As I mentioned previously, I'm at a loss with the situation. Emmett is not making this up and he's truly miserable. To the absolute best of my knowledge, he's not trying to get out of going to school either. No one who knows him thinks that at all. I just wish we could figure out…

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March 20, 2018

Emmett John / My thoughts

It’s likely nothing to worry about but there are two much more serious possibilities that he’s genetically tied to

I still haven't heard from the doctor as to what time Emmett's supposed to be seen in the morning. I'm supposed to call back if I don't hear from them before 9 AM. This should be a simple appointment and likely resulting in a referral to Gastroenterology at Akron Children's Hospital. The most important thing at this moment is ensuring that there are no life threats or serious issues that need to be addressed. I don't think there are but we want to error on the side of caution because what parent wouldn't. Once we get to that point, we will likely get an appointment with Gastroenterology at Akron Children's Hospital. There are a couple things that we are going to need to rule out, and they are more serious…

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March 19, 2018

Read more about the article Received these the other day from @sashkaco just in time for #Autism Awareness month

Received these the other day from @sashka_co, just in time for Awareness month. Some of these will be donated to the my kids school to help raise funds for the students. This is a school for kids with Autism.. Thank you @sashka_co

My thoughts / Photography

Received these the other day from @sashkaco just in time for #Autism Awareness month

Received these the other day from Sashkaco, just in time for Awareness month. Some of these will be donated to the my kids school to help raise funds for the students. This is a school for kids with Autism and the funds raised at the next family night will go to a special event for the kids at the end of the year. These kids work so hard and they deserve to just be kids for a little while. These are amazingly handcrafted and by skilled artisans in the Kathmandu Valley of Nepal. Each purchase helps to empower these women to rise above poverty through fair trade. The bracelets are absolutely gorgeous and I have absolutely no idea how they build these because I can't find a single seam. They…

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March 19, 2018

Emmett John / My thoughts

Hopefully this is a step in the right direction

Emmett didn't make it to school today again, because he's not feeling well. I've been running around this morning but I've got a minute to publish an update before I go walking. Elliott got to school on time and without issue. Gavin's bloodwork was drawn and we are waiting for his numbers to come back. I'm unsure of where we stand in regards to his numbers right now, so I'm a bit nervous for those results. Gavin's becoming increasingly frustrating to work with on his IVIG infusions because he wants things done a certain way but unfortunately, it doesn't work like that. There's some flexibility within the IVIG infusion process but there are fundamental parts that include zero amounts of wiggles room. That being said, once his infusion was started,…

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March 19, 2018

Emmett John / My thoughts

I don’t know what to do anymore

This post was meant to publish last night but I ended up falling asleep. At this point I'm unsure of what we will be doing with Emmett today. I'm hoping to get him into the doctors if he's still not feeling well when he wakes up. The poor kid was up until almost 1 AM. What I do know for sure, is that our morning is busy already. Gavin will need his IVIG infusion first thing in the morning. He will also need his bloodwork done immediately after dropping the boys off at school. I'm really, really hoping that Emmett is feeling better and that he makes it to school. He's been keeping up with his makeup work and that's helps to keep him current. Regardless of how he's feeling…

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March 19, 2018

Emmett John / My thoughts

I’m really getting worried about Emmett

Lizze and I have been working with Emmett to help him fall asleep tonight. He's not feeling good again and hasn't been able to fall asleep. I'm getting worried about Emmett because he's really struggling with these tummy aches. His pediatrician has checked him out on many occasions but found nothing. I think it's time to return to his Gastroenterologist. He hasn't had to go back since his food allergies cleared up but I think it's a good direction to go in. Emmett wants to go to school today but he's clearly struggling. I think I'm going to get him back into see his pediatrician ASAP. I tried calling last night but I can't schedule something until the morning. I wish I knew how to help him but I don't.…

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March 19, 2018

My thoughts

Thank you @dominos for treating us to lunch

If you follow me on Twitter, you may have read my rant about the truly awful experience Emmett and I had while at our local domino's Pizza last week. I was so frustrated and angry that I was live tweeting my experience, so I could keep my cool. Anyway, it wouldn't have upset me as much if it hadn't impacted Emmett so profoundly. He was very upset and felt we had been wronged, and we had been. Later on that day, domino's (corporate whatever department they're from) reached out and wanted to make it right. I explained to them what happened and they were extremely apologetic. Emmett and I accepted their apology and were prepared to move on from there. Domino's Pizza took it a step further and basically treated…

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March 18, 2018

Autism Parenting Struggles / Emmett John / Homework / My thoughts / School Related Issues

Have I mentioned how much I literally hate homework? Can anyone relate to this story?

Emmett missed most of last week because he wasn't feeling well. I had work sent home for him to work on so he wasn't so overwhelmed when he hopefully returns on Monday. Emmett is crazy smart and way ahead of everyone else in his class, so homework is something that should come relatively easy for him. Sometimes it is and other times it's a fricking nightmare. One of the things that Autism has contributed to this mess, is a very literal interpretation of everything. Emmett interprets things in a very literal, incredibly ridged way. There's almost no way to help him work through anything, when he's literally interpretating things. An example that we are struggling with this morning is this. The instructions for a math problem he's stuck on went…

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March 18, 2018