As many of you know, getting our spectrum kids into the therapies they need can prove very challenging. Gavin's been on the therapy wait list for a very long time and guess what he's finally going to be receiving.... Gotta read to find out. ☺
Please give this a read. It's pretty personal and you'll understand why when you read it.
We just got home from my parents and a brief trip to the grocery store. The boys had fun and did really well at the store. I picked up their pizza for this weeks school lunches and had dinner before catching up on a couple cartoon stories. I'm hoping that they go to bed without too much trouble tonight but I enjoyed the time we spent together today.. 😊
I needed a change of scenery today, so the boys and I went to my parents house. The boys can play outside at my parents and I don't have to worry about gunfire. I'm serious about that. We hear gunfire everyday at my house. I'm feeling pretty stressed out today and I'm struggling with everything on my plate but I'm hoping the change of scenery helps to make things a little better...
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The younger boys are bouncing off the walls today. They're getting along pretty well but they are in full on ADHD mode.. lol I don't know what kept me from sleeping well last night but this might have something to do with it. These two have been super clingy lately. I'm literally hanging off the side of the bed and Emmett's legs are laying across mine. It was a rough night but the boys let me sleep in a little bit and that really helped. 😩
Gavin finished his second IVIG infusion into his thigh on Friday. It's now Sunday and he's still having a hard time walking. 😕 He's been on motrin every 8 hours to help with the pain. A couple readers have asked about a port. A port is a semi permanent access point, that provides direct venous access. While I understand why people are asking about it, it's not an option and here's why. Gavin's infusions are subcutaneous, meaning the medicine goes directly into the fatty tissue and is absorbed. A port would be useless for this type of infusion. There are a couple of options I can think of but it's basically just picking the best of the bad ideas but here they are. 1) We could just continue using his…
They are finally asleep and I'm gonna make myself a sandwich (or two, cause it's been that kind of day) and chill out. Maybe catch up on a few shows and perhaps find myself in bed at a respectable time. Who knows, stranger things have happened.. ☺