You’ve got to be kidding me

I sort of feel like the powers that be are shooting at the ground around my feet and screaming dance monkey dance. The last seven days have been a nightmarish blur. We've survived it, and I'm grateful, but the ride isn't over just yet. First, we had Gavin come off his meds and go completely psychotic. He went back on his meds and was rushed to the emergency room a few hours later. He was released the following day, and we came home to Elliott not feeling well. Elliott ended up going to school on Monday because he was feeling fine, only to be sent home after developing a fever. He was home the entire week and was joined by Emmett on Wednesday. Mr. Emmett spiked a fever and had…

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Just a few things I’m thankful for

It's been a lot of doom and gloom lately because of life throwing so crazy shit in our direction, with laser-guided precision. In the spirit of Easter, I wanted to take a step back and gain some much-needed perspective. What better way to do that then share a few things I'm thankful for. 😀 First of all, I'm grateful for my family. We often find ourselves struggling or facing obstacles that may seem impossible in the moment, but we always find a way. I can't ask for more than that. My wife and kids are absolutely amazing and the light of my life. ☺ We have family on both sides that are incredibly supportive, and we wouldn't have made it this far without them. Lizze and I both lost a…

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A quickie update

I fell a bit behind today and wasn't able to get much writing done. We had a relatively quiet day because the boys are still under the weather and Elliott is currently running a fever. Emmett seems to be doing better but is not back to himself just yet. Gavin is physically doing good. His IVIG infusion on Friday completed without any issues. It's been a little while since he's had a flawless infusion. He was happy with that, and we were grateful that he didn't have to go through anything more than was necessary. Lizze and I had a pretty decent day. I was able to go walking but cut it short at the 2-mile mark because Ruby was limping. I carried her back to the car, and we're…

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Time off for good behavior

If the boys are feeling better tomorrow, Lizze and I will get a desperately needed break. It's been nonstop since last Friday, neither one of us have been sleeping well, and we need to unplug ASAP. Assuming we get time off for good behavior, we probably won't do anything particularly exciting. Funds are tight, and Lizze hasn't been feeling well, so the likelihood that we'll actually get out of the house is not high. Maybe I'll grab some takeout or something simple like that. Lizze and I have never really been able to do many of the things that couples do for fun. Either we don't have the money, time or even the energy. It kind of sucks and I'm really trying to improve our situation, so we are afforded…

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Today we follow-up with Gavin’s doctor

Elliott and Emmett are both home from school due to illness. Thankfully, there's no school tomorrow so they will have the weekend to recover. In just a little while, I'll take Gavin to his doctor's appointment at Akron Children's. This is a follow-up from hospitalization this past weekend. I'm not expecting anything crazy to come from this and I'm looking forward to starting the long weekend...

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After tonight’s events, we have 3 major concerns

With everyone being sick and by everyone I mean Elliott and Emmett, it was just Gavin at therapy tonight. I'm at a loss as to how to describe what took place while we were there. That sounds ominous, and it's not really anything like that. Gavin had been anxiously awaiting the appointment because he wanted to update both Dr. Pattie and myself on the day's adventures. What ended up happening was Gavin spent an hour, rambling on about the recent code z stuff I was talking about this morning, along with a ton of other things. The themes of these missions were all good vs. evil. I'm a little concerned about the violent nature of some of his actions on these missions. I'm actually quite a bit concerned by some…

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This week is rapidly going downhill

So Emmett and Elliott are both home sick today. Emmett was up most of the night complaining of his back hurting, a headache, and his face hurting as well. I thought that was kinda weird. He's getting worse as the day wears on and he's also running a fever now. Mr. Elliott is moving around a bit more, but he's got an awful cough and is still running a fever as well. He's spent most of the day laying in bed, which tells me he's definitely not feeling well. We're keeping an eye on both of them and trying to keep them both hydrated, which is proving to be a challenge, especially for Emmett. I spoke with the school today, and there's a bunch of crap going around, we are…

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