My least favorite time of year

The next week or so is going to be very frustrating because it's Pro Football Hall of Fame week. I hate this time of year because it's incredibly disruptive. People flood into Canton, Ohio from all over the world to participate in the HOF festivities. It's the one time of year where Canton cares about how it looks. The street cleaners are out in full force, and the parade route is getting a fresh coat of paint. One of the big issues for me personally is that they close off the park to the public. Parking is impossible to find, and people literally park anywhere they can. Walking becomes much harder because I have to find a new location and that isn't always possible because of everything I have going…

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This scares the sh!t out of me

Gavin is driving me nuts. He's talking nonstop and it seems like even single step instructions are needed to be repeated multiple times. Absolutely none of this is his fault. He's not trying to drive me crazy, and I do my best to keep that in mind, but that doesn't make it any easier to deal with. It's pretty overwhelming to face this day in and day out. The only silver lining is that Gavin is very happy and still being maintained in the home. I don't know how long that will last but all options are limited. We essentially have two options. Firstly, we could find a way to make things work at home. We would have to do that in such a way that doesn't negatively impact the…

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We are it to the @ClevelandClinic

We've made it to the Cleveland Clinic this morning, and that's despite the Universe's best efforts to delay us with horrible standstill traffic. I'm hoping that we won't be here all-day. All that said, we made it safe, sound, and on time. That's what matters the most.

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I wish I could take away his pain

Emmett's in a great deal of pain today and will be for at least the next few days. Yesterday he broke out with mouth sores again and they're pretty bad. His antivirals are keeping things from being any worse than what they currently are but they aren't stopping them altogether. We began doubling up on his antivirals, as we're supposed to when he's in a flare-up and hopefully they will disappear over the next few days. The sores are related to a very rare fever disorder called PFAPA. He's had this all of his life and while it's evolved over the years, it's very, very disruptive. Emmett used to run fevers of 105°F for about ten days, but not actually be sick. He would then be fine for roughly two…

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Today’s Victory: My oldest accomplished something amazing

As I chill on the couch tonight, unable to sleep again because of my fricking leg, I thought I would get my super positive post from yesterday caught up. I will, however, make this quick because I'm really trying to get some sleep. Long story very short, I opted to go help my parents by cutting their grass last night. My dad is working a great deal and his knee is bad. My mom just had her knee replaced and better not even be thinking about cutting the grass. I'm watching you mom. 😉 Anyway, we all went over and everyone played a role in helping. Lizze spent the time with my Mom. Elliott and Emmett took Ruby and Cleo (my parents dog) for a walk. I got to use…

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Signs of Undiagnosed #Anxiety in Children with #Autism

  By Hailey Shafir, LPC, LCAS, CCS-I Anxiety is the single most common mental health disorder in America, and will affect over one third of the population at some point during their lives. In children with Autism Spectrum Disorder (ASD), these numbers are even higher, with some studies estimating as many as 84% of these children also have an anxiety disorder. Often, anxiety may be overlooked in children with Autism because some symptoms of anxiety and ASD overlap, and also because anxiety can present in atypical ways with children on the spectrum. There are several different types of anxiety disorders, and research indicates certain types are more common in children on the spectrum. Specific Phobias (where the child is afraid of a specific situation or object like spiders, small spaces,…

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It’s actually been a pretty awesome day so far

I had a pretty great afternoon. Emmett ended up going with me to take my mom to PT. He did really well while we waited, and of course, my mom kicked ass during therapy as well. Her knee was replaced exactly one month ago and she's already able to walk without a cane while around the house. It seems like she's doing really well. Emmett and I waiting for my mom to finish PT After therapy, we went for a short walk around the mall because she wanted to go walking. Afterwards, Mr. Emmett was hungry, and so we stopped at the food court and grabbed some lunch. It was really nice to just have some time away. Anyway, when I got home, I got some work done, repaired my…

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Fricking #restlessleg is killing me

I'm starting this day at a deficit because I didn't sleep well at all. I've spoken about restless leg a few times in the past because it's a problem for me. My mom significantly suffers from restless leg, and I'm not sure if there's a genetic component to it. I don't know if any of my siblings deal with this, but I should probably ask. Anyway, last night was really bad for me. It's always seems to be my left leg and I don't really know how to describe it other than saying that it's so bad that cutting my leg off seems like a viable option. That sounds dramatic but if you've ever experienced the feeling of restless leg, you probably get it. Thankfully, I don't seem to deal…

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