schizophrenia Archives - Page 168 of 303

Taking a project with my #Autistic son today

The insanely hot weather has defeated us again today. We were going to go hiking but it's simply too hot and we'd be inviting trouble. Instead, Emmett and I are going to take on a little plumbing project that needs to be done. Yesterday, Gavin accidentally clogged our broken garbage disposal. It hasn't worked in a very long time but we only ever have running water to that side of the sink, at least that's all it supposed to have. I never removed it because it just wasn't a priority and we were hoping to actually replace it. Gavin dumped food down there yesterday and it's now clogged. It takes hours for water to drain now and there's no point in trying to tear it apart in order to unclog…

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July 1, 2018

Day Trips / Family Fun / Gallery / My thoughts

Hiking at @StarkParks Sippo Lake with our #Autistic kids

I'm way behind on this particular post because it's been a long week. That being said, I wanted to share pictures from our hike at Stark Parks Sippo Lake. We planned this day trip the night before and it was only about a twenty-minute drive from our house. This particular hike was a bit less aggressive than our previous hike at Quail Hollow a few days prior. The path took us on about a 1.8 mile journey through lightly wooded and marshy areas. While we prefer the more off the beaten path kinda trails, this was still absolutely beautiful. The boys struggled with this one more than they did at Quail Hollow and that hike was over a mile longer. I think the problem was the crushed limestone path. The…

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July 1, 2018

My thoughts

The main reason we’re sticking to the indoors today

We're going to be keeping ourselves indoors today, at least for the most part. We did pretty good this week in regards to getting outside. Lizze and I took the boys hiking twice and walking a few times in between. The hikes were decent hikes and had us tracking at least two miles, through the woods or wetlands. I wrote about the first hike here but still have to write about our second trip. Anyway, the temperature is supposed to be approaching 100°F, with a dangerously high heat index today. Last I looked, there were still high heat warnings issued. I figured it best we stick to the indoors today. One of the things that I want to do is work on the house and get things caught up a…

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June 30, 2018

My thoughts

I actually fell asleep last night for the first time in weeks

I've been struggling with Insomnia for weeks now. I was simply unable to fall asleep until 4/5/6 AM and then I'd sleep until noon or 1PM, it's incredibly frustrating and I have tried everything, I know to do aside from prescription sleep aides. Anyway, last night I fell asleep about 1 AM and slept for 7 straight hours. I don't remember the last time I did this. I'm feeling pretty good today and I'm so grateful.

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June 30, 2018

Gavin / My thoughts

The Good News – The Bad News – The MASSIVE Meltdown

Let's cut to the chase and get the good news out of the way. I'm really hoping to get back on track, as we make our way through the weekend. I have a great deal on my mind but I feel that things will be getting better. Hope is so fragile but even so, it's incredibly hard to completely snuff out. Just when you feel like all hope is lost, it can find its way back into your life. That's not a bad thing. ☺ There was a door that closed on me today and it sucks. At the same time, as a result of that door closing, another one opened and it feels sorta like a last minute reprieve. What happened doesn't really matter and maybe someday I'll share…

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June 30, 2018

Autism Parenting Insight / My thoughts

Dear #Autism Parents, I know how it feels

The stress level in the house is pretty high today. I'm not sure exactly what this high level of stress stems from because it's probably not one single thing. We're worried about Gavin's immunological issues, countless growup issues that we shield the kids from, and all the other things that go along with being a special needs family. While we're getting out of the house on day trips, Lizze and I haven't had a night to ourselves in a long time. Any parent can go crazy without time to themselves. As special needs parents, we almost never get time to ourselves and the extreme toll it takes on our physical/emotional well being is very real. Lizze and I are burning out. In our lives, there is simply too much to…

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June 28, 2018

Common Variable Immunodeficiency / Gavin / Immunology / My thoughts

He’s almost missed 3 in a row and I’m worried

We are very quickly approaching the Gavin hasn't had an IVIG Infusion in over a week time frame and that's making me exceptionally nervous. Since his first infusion all those years ago, he has never gone this long without one. He's never missed three in a row and tomorrow will mark the third missed infusion in a row. I'm going to follow-up today and see if there is anything at all, that I can do to move things along. Realistically there isn't anything I can do but I feel better asking anyway. I'm worried.

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June 28, 2018

Gavin / My thoughts / Updates

2 very important, but slightly delayed updates

I meant to share this eariler but frankly, it still isn't finalized and nothing has actually changed yet. That said, I finally heard back from Gavin's immunologist about the issues with his GAMMAGARD. They hadn't reached out because they were still trying to get everything approved. The got everything approved but insurance screwed up and approved the wrong pharmacy. You can't get these things at just any pharmacy. The pharmacy has to agree to certain terms and there's a lot of red tape. Approving the wrong pharmacy doesn't do us any good because everything is at our pharmacy. I don't know if that makes sense. Basically, insurance made a mistake and the doctor has not be able to reach them to get it fixed. Calls aren't being returned, at least…

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June 27, 2018