Read more about the article Here’s what happened at the Cleveland Clinic
Cleveland Clinic / Gavin / My thoughts

Here’s what happened at the Cleveland Clinic

I'm going to do my best to explain what happens yesterday at the Cleveland Clinic and I'm going to try and make this shirt and sweet.  For starters, Gavin's okay.  The eye exam part of his appointment showed no issues in structure but functionality would require further testing. That would only take place if the genetic testing comes back positive.    They took detailed picture of his teeth and eyes to further document where he is currently so changes would be easier to track.  Right now we just have to wait for the results of his DNA breakdown.  I should also add that this is all done free of charge because Gavin is now part of the a research project trying to learn more about this extremely rare disorder called…

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August 26, 2015
Read more about the article I woke up to screams for help
My Crazy Life / My thoughts

I woke up to screams for help

I know I'm a bit behind on updates for yesterday but I'll catch up later today. This has been the longest day ever or at least in recent history.  There were things that went very wrong and things that quite frankly, were absolute blessings. More on that stuff later though.     I've been working on rebuilding the Guardian Locate website from scratch. It's a process that's can be quite tedious and frustrating but needs to be done.  Anyway, I went to bed about 1:30am and I feel like I was out before my head hit the pillow.  Next thing I know, I hear screams for help coming from Elliott and Emmett's bedroom. This was the kind of scream that made me think someone had come into the house and was…

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August 26, 2015
Read more about the article God grant me patience because I’m gonna need it today
Cleveland Clinic / Gavin / Jalili Syndrome

God grant me patience because I’m gonna need it today

We finally made it. We arrived at 10:30 am for a 10:00 am appointment. It should take about an hour to get to the Cole Eye Institute and I gave myself an hour and a half to avoid being late but the drive took 2 hours.   Between potty breaks, getting pulled over, road construction, getting off in the wrong exit and more construction, it took an extra hour.  I'm not in a really good place at the moment and my stress level is approaching stroke levels.  Happy thoughts.  I'm going to think happy thoughts and pretend we aren't late and everything went perfectly. That's all I have left to do at the moment.    

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August 25, 2015
Read more about the article I really need thoughts and prayers today folks
Cleveland Clinic / Gavin / Thoughts and Prayers

I really need thoughts and prayers today folks

It's going to be a really, really busy day.  The boys will be with my Mom for the day, while Gavin and I make our way to the Cleveland Clinic. This appointment is the first of its kind for Gavin and so I'm really nervous. We will be at The Cole Eye Institute for most of the day. We will be with a genetic counselor for awhile before Gavin undergoes some new tests to help determine the cause of some of his health issues.     What they believe he has is something called Jalili syndrome and of course it goes without saying, that this is extremely rare. Gavin never does anything halfway.  lol/sigh We will likely arrive home just in time for the long overdue family therapy session at Dr.…

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August 25, 2015
Read more about the article Today’s been pretty damn good
My thoughts

Today’s been pretty damn good

The boys and I are going to my parents for dinner tonight. It's sort of a birthday thing for me. I'm actually pretty okay with that. 😀 I have a shit ton of things on my mind and I'm still stressed out but I'm in a really decent place today. I'm feeling like things are going to be okay, at least in the short term.  The kids have been great and any of the problems that did arise, were easily dealt with.  So yeah, my birthday hasn't been the emotional black hole ai was afraid it was going to be. 😀   

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August 24, 2015
Read more about the article The very first day of my 37th year
My thoughts

The very first day of my 37th year

Today's been pretty okay so far. The boys have way too much energy but everyone is getting along just fine. That's a largely positive thing.  We have zero plans for today and I'm okay with that because frankly, I'm pretty tired. I slept kinda strange last night and woke up feeling like I hadn't really slept at all.  It's fair to say that I have a lot on my mind and I'm preoccupied with Gavin's trip to the Cleveland Clinic in the morning.  Either way, I'm going to make the best of today. I want to start the first day of my 37th year on the right foot. 😀   

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August 24, 2015
Read more about the article If you feel like quitting, read this before you do
My thoughts

If you feel like quitting, read this before you do

When things get tough emotionally and/or physically, it's easy to want to give up but it's so important that you don't. Today I turn 37 years old and will be doing so without my wife being by my side for the first time in almost 15 years. That's a bitter pill to swallow, at least for me it is.  Yesterday we celebrated the August birthdays in my family with a cookout at my parents house. Truthfully, I didn't really want to go because I knew I wouldn't be in the mood to be around people but the kids weren't going to pay a price for my mood so we went.  It was a rough start and I avoided contact with everyone I could.  Eventually though, things got a little easier…

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August 24, 2015