Read more about the article I’ve officially applied to Make A Wish for my son
Autism Parenting Insight / Gavin / My thoughts

I’ve officially applied to Make A Wish for my son

At 2 am this morning, I was unable to sleep. I've got many things on my mind and I couldn't shutdown. One of those things weighing heavy was this whole Make-A-Wish thing for Gavin. I began the process after Gavin's immunologist suggested we apply last year. The process halted for a variety of reasons, but two reasons created the most friction. The first of which was Gavin didn't want to do anything. If he was unwilling to participate, there's no point in continuing. The second reason was more emotional on my part. Knowing your child qualifies for Make-A-Wish is a doubled edged sword. On the one hand, it's such an amazing opportunity for Gavin. On the other hand, he qualified in the first place. To qualify, things have to be serious about…

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June 24, 2017
Read more about the article He’s getting worse and I can’t hide from that truth anymore
Gavin / Heartbreak / My thoughts

He’s getting worse and I can’t hide from that truth anymore

It's becoming more and more difficult to pretend that Gavin's not getting worse. I know he's never going to get better, and that's something both my wife and me have come to accept over the years. While I've accepted that fact, it's not that cut and dry. Gavin's in an almost constant state of decompensation. Sometimes it's a slower process, and harder to pick up on, while other times, it's pretty rapid. One of the main issues revolves around his memory. I tend to want to rationalize it by saying something like, he's just having a bad day or everyone forgets things. The truth is, it's not normal to forget things like Gavin does. It's not normal and it's not a good. Here's the latest example of what I mean.…

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June 24, 2017
Read more about the article It’s been a stressful #Autism Parenting day
Autism Parenting Woes / My thoughts

It’s been a stressful #Autism Parenting day

Very little has gone right today, at least that's how it feels as I'm ending the day. The boys have each had their struggles, but Elliott had a great day at school and did his homework right away when he got home. ☺ Emmett on the other hand, was a handful for most of the day, at least until he went to bed. I lost count of the meltdowns throughout the day and my ears are still ringing from all the screaming. I know he's in a flare, but my goodness was he difficult today. Even though I understand that most of this is beyond his control, it still has the same impact on me as if he were doing it on purpose. He was miserable today and I'm praying…

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April 11, 2017