Parenting Archives - Page 63 of 720

Some of Gavin’s labs are coming in and they’re still very concerning

It's been an emotionally exhausting day. I spent most of today trying to keep myself focused on the things I have control over. Unfortunately, there's a great deal that I have no control over and that sucks. I was very consumed with waiting on Gavin's lab results to come back from yesterday's repeat lab work. You can read the back story here. About 10 am this morning, part of the results came back and unfortunately, they haven't improved. I'm still waiting for the results containing his immunoglobulin levels because that's the big one. It stands to reason that we're likely looking at those results very concerning results being verified. As it stands, we are looking at another day before we get those results back and I can't explain just how…

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September 2, 2020

Gavin / My thoughts

Quick Update On Gavin’s Condition

It's been a long stressful day but when is it not, right? I wanted to drop a quick update on Gavin's situation because I have some news. After a many phone calls and several attempted workarounds, Gavin's new lab orders were faxed to Akron Children's Hospital. By the time we got there, it was pushing 1pm. Gavin did great, as usual and we're currently waiting in the results. It's frustrating because I hate waiting, especially considering the stakes but hopefully, by the time you read this, we'll have some answers. Not much else to say at this point because today has been consumed with getting this addressed. I told you it would be quick.

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August 31, 2020

Gavin / My thoughts

I’m really worried about his test results

We have a rather eventful week a head of us. The direction it takes will largely depend on the results of Gavin's labwork Monday. Background: If you recall, Gavin's labs from this past week were so concerning that we're retesting to make sure they're correct. So much is so drastically wrong that we need to rule out lab error. Gavin's not exeriencing any obvious problems and he's not complaining about anything. With how bad these labs were, he should be in pretty rough shape. Until we know for sure though, we aren't taking any chances and have locked down even tighter. End Background This will go one of two ways. Gavin's labs will either come back normal and we move forward or they will come back problematic and require immediate…

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August 30, 2020

My thoughts

Helping my #autistic son manage his own routine and schedule

One of the things I really need to invest more time into is helping Gavin manage his routine. He does pretty good with major things like brushing his teeth or taking his meds. That's a awesome because those are both very important things. The stuff he really struggles with is everything in between. He so easily loses track or time or gets lost in what he's doing. He's been telling me lately that his imagination takes over. Gavin needs frequent reminders in order to stay on task and not drift too far off course. I mentioned before that I'm using visual prompts and check lists to help him remember but I'm always looking for better ways to help him navigate life. Sure, it's fun laminating things but there's no point…

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August 29, 2020

My thoughts

It’s been an okay day

The boys have been having a quiet morning. The stress level in the house is down a bit and we're getting a breather. Lizze is filling out all the paperwork for the boys and then I'll get everything submitted. As soon as the school gets the paperwork, the boys will get their schedules and their Chromebooks. Lizze and her mom will pick everything up and drop it off as soon as it's ready. She wants to help and I'm grateful. Elliott snuggling Ruby Until we know more about Gavin's situation, we are locking down even tighter. Speaking of Gavin, I've not been able to get ahold of his immunologist all week. I've left messages and have not heard back. I hope everything is okay because they are in one of…

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August 28, 2020

COVID19 / Distance Learning / My thoughts / Planning / Remote Learning / School

We made a major decision about this school year

Let me start by saying, I hate everything about this school year. I hate how our kids and teachers have been put in impossible situations because our leadership won't take COVID seriously and do what needs be done in order to get us through this. That being said, we've made a major decision in regards to school for the boys. While I can go into more detail at a later time, Lizze and I agreed to pull the kids from their current school and put them back into their old school. After 2 weeks of technical issues, the kids literally crying and me on the brink of a fucking stroke, I decided this wasn't going to work. The reality is that the entirety of this responsibility falls on me. It's…

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August 28, 2020

Confessions / My thoughts

A huge thank you and a birthday confession

Today has been a total roller coaster ride. I turned 42 years old today and it was a rough birthday for a million reasons. The last few days have been particularly difficult for me. The other night I had a very vivid dream. It was basically that my family was whole and that my marriage never imploded. It was just everyday life things. Kids went to school, I worked and we did all the normal things we used to do. It felt so real and it was one of those dreams where it's like you wake up in your dream and think you're actually awake. It's really weird. Anyway, it was such a good feeling and it honestly felt like all of this last year had just been a bad…

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August 25, 2020

Why Money Will Never Determine Happiness

Most of us go through our lives, never receiving a mountain of money in the post. It just doesn't happen to the vast majority of us. That's statistics for you. But even when it does, we should take note of the effects that it has. The world seems to teach us that the product of hard work - financial resources - is a route to happiness. But when you study the lives of people who have mountains of the stuff, you soon find something entirely different. They're not particularly pleased with their lives. That's a fascinating finding for our purposes. It means that the way you feel often has very little to do with the amount of money that you have in the bank. Pexels - CC0 License The observations…

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August 24, 2020