It was another sleepless night for this Dad

It was a rough night last night.  While the boys slept through most of it, I couldn't sleep until 4am because I was too congested.  Lizze was unable to sleep as well but ended up falling asleep on the couch.  I'm totally dragging today.  Thankfully, there are only a few appointments today and nothing else really going on in between.  I'd kill for a nap right now but I don't see that happening anytime soon.  I really grateful that the kids are doing as well as they are today because I need all the help I can get.... 

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A heartbreaking update on Gavin 

Gavin had his IVIG infusion tonight and seems to have done better this time around. He went to bed feeling fine but he's not been sleeping well. I've been watching him sit up in bed, stand up, sit back down and go back to bed.  He's done this a few times tonight and I have no clue what that's all about.  I'm not even sure how awake he is. I haven't seen him do this is in a little while so I'm hoping he'll sleep now. While we're on the subject of Gavin, I thought I should probably update everyone on what Gavin's emotional status is. In short, not so well.  He's spending more and more time alone in his room.  He's going on some really weird, borderline creepy missions.…

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Maggie just got into a fight with a massive raccoon

I just let Maggie outside and not two seconds after she hit the porch, something came walking up the steps.  Maggie was gone and all I heard this really loud growling.   Next thing I know, Maggie's going absolutely crazy and she's in a fight with something.   I ran into the house to grab a flashlight and wiffle bat before dashing back out to the yard. The fight was taking place in some brush so I couldn't see what was going on.   I know a wiffle bat won't do shit but it's all I had immediate access to in the moment.  It was so loud that my neighbors came out to make sure Maggie was okay.   A few seconds later, Maggie bursts through the bushes and is…

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We spent the afternoon in the gorgeous weather 

Elliott was really upset when Emmett went with grandma and he had to wait until tomorrow.  If there's one thing that many kids on the Autism Spectrum struggle with, it's waiting.   I spent some time this afternoon resting cause I wasn't feeling well. It came out of nowhere but was gone as fast as it arrived.   Elliott was really struggling and asked if we could go hunt Pokémon at the garden center. I wasn't feeling a lot like walking around at the park but it was what I could do to comfort him and it worked.   All four of us ended up going and while we weren't there all day long, it was still nice to get out and enjoy the weather.   I took lots nature…

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Well that was unexpected 

We had a nice little surprise today.  My Mom called and wanted to come by to pick up Emmett.  She thought they could spend the day together and play boardgames, which is something Emmett loves to do.   She wants to take Elliott tomorrow and spend the day doing crafts like he loves to do.   While the boys are in school, Gavin tends to spend a lot of time with my Mom and so they'll get their time in a short while.   This was just a really nice surprise and it helped to break up the day..  ☺ 

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It’s the end of the world. Well, it’s the end of Elliott’s Minecraft world anyway 

The boys have really been into Minecraft lately and Elliott discovered mods for Minecraft PE. I warned him countless times that while mods may work, they may not always work correctly or they could even corrupt his game data, meaning he could lose all his world's.   Some of the mods began causing problems right away.  No one could join his world and he was no longer able to join our family realm.   He lived with it for a couple weeks but decided that he needed to remove all the mods and get things working correctly again.   Unfortunately, that ended up costing him the world's he's worked on for many months and he now has to begin again.  He's pretty devastated right now but it is what it…

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Good News :) 

Gavin seems to be doing a little better now.  The meds have kicked in and he's moving around without wanting to puke his guts out.  This is good news, as the title to this post states.   I'm making him take it easy for now because I don't want him to over do it and end up not feeling well again.  We really have to be careful when it comes to his health. Hence fragile health.  We also have to do his IVIG infusion today and I'm hoping that goes better this time around.   For now, I'm just grateful he's doing better and is no longer in any pain or discomfort. ☺ 

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Gavin isn’t doing well this morning :(

I was up really late with the two youngest boys and woke up to Gavin doubled over in pain, feeling like he was going to vomit.   It's really frustrating to try and get information from Gavin about how he feels because that's a skill known as expressive language and Gavin is sorely lacking in that department.   All we can do is try to piece together what's going on based on what we see and how he's acting.   As far as this morning goes, I gave him his anti-nausea medication and Lizze got him something to help speed things alone.  Part of the issue is that Gavin may be um.....backed up. We addressed that and we'll see if that helps.   Back to the frustrating side of things.…

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