Read more about the article Gavin’s Friday IVIG infusion is underway
Gavin / IVIG Infusion

Gavin’s Friday IVIG infusion is underway

Gavin's Friday IVIG infusion is well underway and so far, he seems to be doing just fine.   Typically, he will sit in the exact same place and do the exact same thing. Tonight is no different, as he's playing his tablet and constantly checking the needle sites to make sure that nothing is leaking.   This particular infusion is actually going pretty quick and he should be done sometime around 8pm tonight.   We're going to give him medication that will help to limit the issues he sometimes gets as a result of receiving foreign antibodies.   All should go just fine and within about an hour or so, he'll be fast asleep, recovering from this life saving procedure.  

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August 26, 2016
Read more about the article An example of how locked into routine kids on the #Autism Spectrum can be
Elliott / Emmett John / Routine

An example of how locked into routine kids on the #Autism Spectrum can be

I went to pick the boys up from school yesterday. Actually, Lizze and I both went to pick the boys up from school yesterday.  We got there a little bit before 3pm, which is dismissal.  As my long time readers may recall, I typically get to the school about an hour early, park in the shade and write.   This makes me first in line to retrieve my kids.  The boys will usually see me there during their hour of school and feel better kowing that I'm there to get them.   Yesterday, I walked into the school rather than wait in line forever.  When I walked into the school, it was a little before 3pm and I caught Elliott walking out of the office and Emmett in somewhat of…

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August 26, 2016
Read more about the article More neighborhood drama because why the hell not
My Crazy Neighborhood

More neighborhood drama because why the hell not

I meant to share this the other night but I just didn't get a chance.   I'm pretty sure this was a drug bust on a known drug house. I can't say that for certain because I didn't talk to the police parked right behind my house, blocking off the alley.  The house in question is widely known to be dealing but have never really been much of a problem, aside from the occasional domestic dispute.  Either way, the cops were marching in and out of the house for quite some time. The entire alley was blocked of as well.   I took this picture from my back steps. I'm really grateful for my home and the effort I put into keeping it is a testament to that. At the…

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August 26, 2016
Read more about the article Gavin gets a special day today 
Gavin / My thoughts

Gavin gets a special day today 

Gavin is spending the day with my Mom. There's no big reason for it. It's just one of those just because things. Gavin loves hanging out with his Grandparents but most often, he's with his brothers.  This is giving Gavin a chance to just hang out without having to compete for attention because his younger brothers are sorta hogging all the attention.   I'm really happy that he's getting some one on one time because he deserves it...  ☺ 

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August 26, 2016
Read more about the article We are still struggling with sleep issues
Elliott / Emmett John / Sleep Issues

We are still struggling with sleep issues

Sleep issues are one of the more prolific symptoms that can present when someone's on the Autism Spectrum.  It's one of the more exhausting challenges as well.  Elliott and Emmett are both struggling with sleep issues.   Elliott wakes up in the middle of the night and can't go back to sleep. Sometimes he's not able to fall asleep either.  On the other hand, Mr. Emmett can't seem to fall asleep in his own bed. He sneaks out of his bed after being tucked in and makes his way to our bed, where he proceeds to encase himself in our pillows and blankets.   We put him back in his bed after he's asleep and most of the time he'll stay there.   There are countless reasons why sleep can…

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August 26, 2016
Read more about the article I was honored with the 2016 Best Autism Blogs award from @healthline 
Awards / My thoughts

I was honored with the 2016 Best Autism Blogs award from @healthline 

Over the years I've been awarded a few times for my efforts.  I'm very proud of these awards. I'm both humbled and honored to receive them. Earlier this week, I was honored once again with the 2016 Best Autism Blogs award.  This is so cool and I'm so grateful to be among the handful of bloggers to receive the award this year. I would encourage you to click the above badge, visit healthline and check all the other amazing bloggers who are working to raise awareness for Autism. Thank you again for this great honor.  ☺

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August 26, 2016
Read more about the article How many times can one father’s heart break? Too many. The answer is too many. 
Childhood Disintegrative Disorder / Gavin / My thoughts

How many times can one father’s heart break? Too many. The answer is too many. 

I don't feel really positive right now and that bothers me.  Unfortunately, the reality is that sometimes life just sucks. Life is unfair and cruel at times and it feels like Gavin has had a disproportionate amount come his way. Gavin's still hallucinating and frankly, things are getting worse. He's becoming very preoccupied with his visibly challenged group of super best friends and is spending less time in the reality that the rest of us live in. His friends are always coming with him now and he's involving them in his decision making. This morning he drew a picture of Twilight Sparkle's Midnight form. Twilight Sparkle is one of his visibly challenged super best friends. Before he drew her in this particular form (seen below), he told me that he…

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August 26, 2016