I don’t even know where to start

Emmett had the hardest time sleeping last night. I'm going to skip the pleasantries and get right to the point.   Elliott woke me up around 3am because apparently, Emmett had woken up and decided to screw this plastic nut on his index finger.  The only reason he was able to get it on was because it's threaded on the inside.   I don't know what he was thinking but he screwed this thing over his knuckle, which couldn't have been easy or comfortable.  By the time they came and got us, his poor little finger was swollen purple.   We had to do a 3am emergency removal of this stupid and it wasn't easy or pleasant. That said, I did manage to get it removed.  Unfortunately, Emmett and Elliott…

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I’m determined to make the best of today 

I don't think we have anything going on today, aside from the kids at school and Lizze at her night class.   I'm hoping to get some work done and maybe hit the treadmill if I'm feeling up to it.   There's quite a few things that I have to figure out, none of which are easy but they need my attention.  It's been really hard for me to focus on many of these things because I'm so overwhelmed right now.   Anyway, I'm really determined to make the best of today because....well, just because.... ☺ 

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A massive and important update on the current state of Gavin’s mental health care

Disclaimer: I'm venting/ranting about the current debacle that is Gavin's mental healthcare. I'm really frustrated, angry and overwhelmed by all of this because there's so much at stake. When you read this, keep in mind that I'm experiencing all these emotions and this is my way of sharing our story but also processing all this as well.  I heard back from the nurse at Gavin's psychiatrist's office this afternoon and we had respectful but totally unproductive conversation.   This was one of those conversations where I'm not sure if I'm more frustrated now than I was before but I think I am.  Yeah, I'm pretty sure I'm more frustrated now.  After listening to what happened, this is what the nurse told me: I wish I could tell you that things…

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It’s almost bedtime 

It's been a stressful afternoon and I'm counting the minutes until it's time for the kids to go to bed.   We got back from Dr. Pattie's office a short while ago and just finished dinner.   There's a few things to touch on tonight and I'll get to them in a little while.  Right now I just want to get the kids down for the night and catch my breath... 

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Here’s what happened between last night and today in regards to Gavin’s psychiatrist 

I made the call to our child psychiatrist's office today.  I explained my frustration in regards to last night's debacle and did so in a very respectful way.   I really do find that the bees with honey approach works best in situations like this. At the same time, I was firm and stood my ground.  This kinds of stuff happens way too often anymore and with a child like Gavin, we need to actually see the doctor when we're scheduled to.  I also realized that there's actually probably some protocol for prescribing Clozapine that requires face time with the patient on a regular basis.  Anyway, someone is supposed to be calling me back shortly to sort through this and find a resolution.  A reader pointed out in a comment…

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I had to practice some self-care today

I took a nap while Gavin was sleeping off his infusion and morning meds. Lizze was at an appointment and I being totally exhausted, I wasn't really doing any good for anyone.   I'm still tired but I'm in a better headspace and that's important...  The boys will be coming home soon and I still have a few things to do before that time.   Taking a nap today was vital self-care and while it did take time away from what I was doing, taking care of myself is of equal importance. 

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Fingers crossed with hopes that this morning’s IVIG infusion will be without side effects

We had to do Gavin's IVIG infusion this morning because we got home too late last night to start it.  Everything went smoothly and without a problem.   Gavin's currently sleeping off the infusion and his morning meds. At this point, there's no sign of any nasty side effects. That's a good thing cause we've been seeing more of those lately.  I was up really early and I'm going to try and close my eyes before getting back to my to do list for today.  My hope is that Gavin wakes up feeling fine and we can go on with the day without any major complications.. 

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A way too early start to the day

It was a really early start to the day.  Emmett had a bad dream and climbed into bed with us around 5am.   He couldn't seem to get comfortable, so neither could I.   Around 5:30am, I finally gave up and moved downstairs to get my day started a bit early. My eyes are heavy but I'm not feeling that bad.  It's going to be a longer day because it started way too early.. 

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