It's been a stressful afternoon and I'm counting the minutes until it's time for the kids to go to bed. We got back from Dr. Pattie's office a short while ago and just finished dinner. There's a few things to touch on tonight and I'll get to them in a little while. Right now I just want to get the kids down for the night and catch my breath...
I made the call to our child psychiatrist's office today. I explained my frustration in regards to last night's debacle and did so in a very respectful way. I really do find that the bees with honey approach works best in situations like this. At the same time, I was firm and stood my ground. This kinds of stuff happens way too often anymore and with a child like Gavin, we need to actually see the doctor when we're scheduled to. I also realized that there's actually probably some protocol for prescribing Clozapine that requires face time with the patient on a regular basis. Anyway, someone is supposed to be calling me back shortly to sort through this and find a resolution. A reader pointed out in a comment…
I took a nap while Gavin was sleeping off his infusion and morning meds. Lizze was at an appointment and I being totally exhausted, I wasn't really doing any good for anyone. I'm still tired but I'm in a better headspace and that's important... The boys will be coming home soon and I still have a few things to do before that time. Taking a nap today was vital self-care and while it did take time away from what I was doing, taking care of myself is of equal importance.
We had to do Gavin's IVIG infusion this morning because we got home too late last night to start it. Everything went smoothly and without a problem. Gavin's currently sleeping off the infusion and his morning meds. At this point, there's no sign of any nasty side effects. That's a good thing cause we've been seeing more of those lately. I was up really early and I'm going to try and close my eyes before getting back to my to do list for today. My hope is that Gavin wakes up feeling fine and we can go on with the day without any major complications..
It was a really early start to the day. Emmett had a bad dream and climbed into bed with us around 5am. He couldn't seem to get comfortable, so neither could I. Around 5:30am, I finally gave up and moved downstairs to get my day started a bit early. My eyes are heavy but I'm not feeling that bad. It's going to be a longer day because it started way too early..
Recently, Gavin's been complaining of stomach aches and nausea. Yesterday morning, he wouldn't even eat breakfast because of this. Gavin is very motivated by food. He plans his life around breakfast, lunch and dinner. Anyone that knows Gavin would probably not even believe me if I said Gavin didn't want to eat breakfast. I don't know what the deal is but it doesn't seem to be bathroom related. It also tends to come and go. He might feel sick for a little bit but then it goes away, only to return later. It's weird and we'll have to keep an eye on this. It probably wouldn't hurt to see the pediatrician for a check up anyway. I will say that Gavin went to bed without any problems popping up.…
I don't normally vent in a manner this uncensored but I'm fucking pissed. If I have any hope of sleeping tonight I need to purge just a little bit. We had an appointment with the boys psychiatrist tonight. Actually, we were supposed to have a appointment. For the most part, Elliott and Emmett were just med checks, so it's not a huge deal for them. In regards to Gavin though, it's an entirely different situation. We needed this appointment for him because of everything he has going on right now. Unfortunately, we ended up leaving without being seen. Our appointment was at 6pm and we were there by fifteen minutes till. Reception was already shutdown and there was no office staff present to sign us in…
We are finally at the psychiatrists office for all three boys. Elliott is a simple meds check and refill, while Emmett's is in regards to a meds check, refill and sleep issues. Gavin on the other hand is a far different and much more complicated situation. I'm sitting here sick to my stomach because I don't know what's going to happen. We may not have any choice but to adjust his meds and that scares the shit out of me. Thank God I'm not doing this alone anymore. Lizze and I are prepared to do whatever we have to in order to help Gavin. I'm seriously shaking as I'm writing this because I'm terrified we have to increase his Clozapine.