Just one of the unique challenges that #specialneeds parents face

Gavin had a little mini emergency tonight. He had us worried for a little while but seems to be fine now. In the middle of dinner, he got a really bad migraine, I gave him Motrin and told him to go lay down. It's really hard to tell what's going on with him because he is unable to answer any questions that could help me know how to better help him. I asked him if light or sound makes his pain worse and couldn't answer that. I asked him to be more specific about where the pain is and he couldn't really do that either. This was taken pre-covid Lizze was brought in via phone to help because she lives with migraines on the daily and she might have more…

1 Comment

I totally got this

I want to recognize that I accomplished one of my goals for 2020. I set out to record 40 episodes for season 3 of my podcast and improve upon season 2. Today I dropped episode 40 and I'm done until next year. It feels so good to have accomplished this, especially considering l the obstacles. I've already got interviews booked for January and that's awesome. It took a little longer to get this last one out cause it's been a rough weekend but I was only about 48 hours late. ☺ The kids have been on edge today. We're getting closer to Christmas and the anxiety is building, as is the anticipation. This is historically a challenging time in our house, even when everything else is going well. Everyone's sleep…

0 Comments

My kids are learning to cook

Okay. I'm really trying to get back into writing more about our daily lives. There's a ton of things I don't talk about because I just lack the energy to put those experiences into words. I'm seeking to change that and as season 3 of the podcast comes to a close, I have more time to write. The podcast is so time consuming but I'm finishing up episode 40 for release today or tomorrow and I'm done for the year. With that said, here's some cool shit I want to share with you folks. ☺ It's no secret that the pandemic has been a nightmare for all of us this year. We now have a vaccine but it won't be widely available for many months. That's still a hugely positive…

1 Comment

My #autistic son gave himself a haircut today

I know some of you may not get how unbelievably awesome this is but I'm sure you'll be excited for Gavin nonetheless. Gavin has made it very clear that he wants to live with peers or other people his age, likely walking a similar path in life. Lizze and I have been talking about this and I feel this is a hugely positive thing, as does she. The challenge is how to navigate this and whether or not Gavin can handle it. Actually, it's more like how much independence is he capable of without serious safety concerns. Obviously, nothing can or will happen until we're in a post COVID world but that doesn't mean I can't work with Gavin to help him reach his potential while we wait. This morning,…

1 Comment

I’m so unbelievably grateful and here’s why

Huge thanks to CKP Heating & Cooling, LLC for working with me today. Our furnace went down and we've been on lockdown for 281 days because my son is #immunocompromised and #COVID is deadly serious. Jake came out, wore a mask the entire time and talked to me via phone so we didn't have to have direct contact. He never came up to the first floor at first. An issue arose after he left and I called him for help. He stopped by on his way home. This time he had to access our Nest thermostat, which was on the first floor. I left the door unlocked for him. He came in, found the issue in the furnace itself and fixed it. He again wore a mask the entire time.…

1 Comment

I’m really nervous about this

By the time you read this, we will likely be on the other side of this particular situation. In the morning, we have someone coming to service our furnace. Something is very wrong with it and it needs to get done or we won't have any heat. Normally this wouldn't be a big deal but since COVID, nothing is not a big deal anymore. I reached out to some medical experts I know to figure out the safest approach to having this done. After chatting for a little bit, it was concluded that assuming they actually wear a mask like I was promised they would, and we stay as far away as we can, while wearing our own masks, the risk should be low. The current plan is to have…

0 Comments

It was a really nice surprise

The boys got off to a mixed start today. Elliott fell back asleep while I was working with Emmett and missed the first 10 minutes of class. That's a bit frustrating for me but he's back on track and that's what I'm going to focus on right now. While Emmett was in between classes, he used his down time to surprise me with a cup of hot chocolate. I was working and he thought he would do something nice for me. It was a sweet gesture and I'm still smiling from it. ☺

0 Comments

I want to talk to you about my #depression

It has occurred to me that I haven't talked about my depression much lately. I talk about to people who reach out offline quite a bit and I sometimes forget to do that here as well. One of the reasons this occurred to me is because I noticed today that I'm struggling a little more than I have been in regards to managing my depression. I think everyone deals with life differently and depression hits people in different ways as well. We're all different and that's okay. For me personally, I know depression is once again gaining a foothold in my life when I begin worrying about dying. It's not easy for me to admit that because there's only a few people in my life that are aware of this…

3 Comments