Gavin seems to be struggling more today, and it’s heartbreaking

Gavin's had a rougher day thus far. He seems to be on edge, but there's no apparent reason why and if you ask him, he says he's fine. He had his IVIG Infusion this morning, and per the current norm, he did it all by himself. Unfortunately, he ran into a few snags and rather than merely address them; he freaked out instead. One issue was that the one injection site was leaking a little bit. This happens, and all we have to do is create a better seal at the infusion site. Gavin knows this, but instead, he chose to remove the needle all together which meant it would have to be placed back into his belly. That means more pain, and I don't know why he did that.…

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Homework on the table and pajamas at school

Everyone made it to school today, but we ended up having two small problems after the fact. Shortly after Lizze arrived home from dropping them off, we realized that Emmett's homework was on the table. In all the rush, it never made it into his folder. I know that his homework is his responsibility but Emmett's never forgotten his homework before and I know how he would end up reacting when he realized it was still at home. For that matter, I know what we went through last night trying to help him finish it, and I won't let that be in vain. I was able to email the homework to the school, and it wouldn't be a problem to get it to Emmett. While I was on the phone,…

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He’s afraid to go back to school

Elliott is not able to sleep tonight because he too afraid to go back to school tomorrow. I've tried to reassure him but he's really stressed out after the day he had yesterday. I'm hoping he'll fall asleep because I want to go to sleep. I'm hoping that he'll feel better after some sleep and school won't be an issue today. He will be going to school with Adderall on board because we now know he's struggling without it. I'll be praying for my little man today.

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Elliott came home from school sobbing

Elliott had what could only be classified as a bad day at school today. At dismissal, Elliott was escorted to the car by one of his teachers. Elliott was apparently upset and had clearly been crying. I don't like seeing that, and I immediately kick into protective mode, as most parents would. I also understand that things aren't always as they appear. The teacher was frustrated with Elliott, and I can understand that, as I find myself there on occasion as well. What I heard from the teacher sounded like Elliott but what I didn't like was the way it was presented to me in a public place, in front of Emmett and everyone else being dismissed. There was a tone that I didn't feel was appropriate when discussing the…

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Sometimes change is good

There's been an unexpected change of plans today. I've had to reschedule the SSI appointment because I wake up not feeling well. I'm the only one that can take Gavin because I'm the payee. It also turns out that there is some paperwork that I didn't realize I needed that makes rescheduling the best thing to do anyway. I hate last minute changes in plans, but sometimes it's unavoidable. Sometimes it also proves to be the best possible thing. 😊

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Gavin’s showing more signs of regression

I thought it would be a good time to do an overall update on how Gavin's doing. I've already mentioned a few times recently that Gavin just turned 18 last week. That means we now have an adult with Autism in the house and that's a first for us. That's not exactly true. Lizze is an Aspie, but it just seems different because its one of our kid's who's now an adult. Gavin's got quite a bit on his plate for someone so young. Lizze and I were talking about this the other night as we were trying to plan out this whole guardianship thing and we ended up discussing how we thought he was doing. It evolved into comparing what our concerns for him were and things we've noticed…

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#Autism Parenting: The Transition to Adulthood has Begun

It's going to be a slightly stressful day today because I have to meet with social security in regards to Gavin. Part of this is merely a routine review, but the other part of it is going to be dealing with Gavin turning 18 and me retaining my payee status over his account. I'm not worried about Gavin qualifying because he qualifies. I've just never had to do this before. It's the first time we've had to have one of these meetings as they only happen every so many years. Hopefully, this will be done in under two hours because otherwise, I'll be late getting the kids from school. Meeting with social security is the first of many steps we will have to take because Gavin has turned 18. The…

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So far, I’m pushing through the exhaustion

Work has been keeping me pretty busy lately. That's never a bad thing because anytime I can improve our financial status, it's a good thing. I haven't had much in the way of work this morning, which frankly is probably a good thing because I'm so tired. I do have myself a new writing buddy. Ruby sleeps on my lap while I write and I'm not sure if that helping or hurting.. ☺ While it's true that I want nothing more than to climb back into bed, I'm forcing myself to not only keep my activity level up but also workout as well. I even using the laundry to help me reach my flights of steps for today. The more I push through this exhaustion, the more I'm going to…

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