Parenting Archives - Page 288 of 720

All I can do is what I feel in the moment, is best

It's been a pretty good day today. The boys seem to be doing better and I'm hoping that they can both return to school in the morning. Elliott's fever is gone and he's feeling fine now. I don't know what was going on this morning. I don't know how Emmett will be doing but he's still only able to do shakes and is avoiding all solid food. If he's still not eating, I don't see how he can go to school. This whole thing is so frustrating because all I can do is what I feel in the moment, is best. There's no instruction manual and very little in the way of guidance available to help us know what to do. 😱 At least they seem to be doing okay…

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January 31, 2018

My thoughts

Please don’t get any worse

The boys are both home from school today. Emmett's par for the course with his fever flare and Elliott woke up the morning running a fever of 101.2°F and not feeling well. There's shit going around the school and it looks like it may have come home with Elliott. It's going to be a very, very long day. I'm hoping that whatever Elliott has goes away quickly and it doesn't spread through the house. That's the last thing we need right now.

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January 31, 2018

Inspirational Posts / My thoughts

I’m so fricking tired of these impossible decisions

I get so frustrated and overwhelmed because there are so many impossible decisions that need to be made on what feels like a daily basis. What are impossible decisions? Impossible decisions are decisions that must be made knowing that there are no good options to choose from. At the risk of sounding cliché, it's damned if I do damned if I don't... Currently, we're trying to figure out a solution to all the problems surrounding the boy's education. I'm not going to go into those problems again right now, but if you're in need of a refresher, you can look here. I spent an hour tonight discussing options with the kid's education specialist/psychologist tonight during our regularly scheduled Tuesday night therapy session. The way I see it, we only have…

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January 31, 2018

Autism Parenting Struggles / My thoughts / School Related Issues

#Autism Parenting: Picking the BEST of the WORST options

We have therapy for the boys tonight but Lizze isn't feeling well and she will probably stay behind. It will likely be the boys and I heading out tonight. Tonight's focus is going to be on school for Elliott and Emmett. We have to figure something out because while the boys like school, they're also miserable at the same time, albeit for different reasons. This needs to be a very serious discussion about our options. I'm hoping Lizze feels up to going but but if not, we've discussed it amongst ourselves already and have reached a consensus. We both agree that the status quo isn't in the best interest of the kids. What we do about it is where we become less sure of ourselves. At this point, I feel…

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January 30, 2018

My thoughts / Reviews

Review: Is the EcoQube C a great project for kids with #Autism? (@DesignADI)

This review is brought to you by EcoQube. They were kind enough to send me an EcoQube C to put together with my kids and help raise some Autism Awareness. I'm always on the lookout for projects I can work on with my kids. I really like to present my kids with things they can do that don't revolve around video games or tablets. When I came across EcoQube, I thought it would be a fantastic project to do with my kids. I reached out to EcoQube and explained what I was looking to do. They were super excited to be a part of raising Awareness for people with Autism and their families. I was sent the EcoQube C because that's a really good place to start and it's something…

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January 30, 2018

My thoughts

I have enough to worry about already

Elliott is off to school while Emmett is home because of a fever flare. I'm really proud of Elliott because he did awesome this morning. Neither one of the boys likes going to school without the other but Elliott has been be very good about it this week. Emmett is in rough shape but is currently working on his makeup work with Lizze. I sent the school pictures of his mouth and that helps to document his absence. I've been stressed out because of these new truancy laws in Ohio but I've recently decided not to give a single shit about them. Here's the thing - these laws were not written with kids like Emmett in mind. He's living with medical issues that can often interfere with school attendance. We're…

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January 30, 2018

Gavin / My thoughts

It’s all about Gavin this morning

Gavin's bloodwork is done for the week and I'll follow up with the pharmacy this afternoon. I need to remind them to have his medication delivered by Wednesday evening. There's plenty of time for them to get the results and gain approval in order to release another seven days worth of pills. Next up for the day is Gavin's IVIG infusion. We actually just received a resupply of his infusion meds on Friday and so we are good to go for the next thirty days. They've been doing a lot better with Gavin's infusion supplies lately and that's awesome. As a parent, it's stressful enough just knowing your child has all these life threatening health conditions. Worrying about if/when their medications will arrive and arrive correctly is just that much…

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January 29, 2018

My thoughts

How my appointment went

My meeting with HEAP went as expected. It wasn't great but it wasn't terrible either. This does help us with our utilities by leveling out the payments. As an example, we now pay $130/month for gas and $130/month for electric. It's very similar to being on a budget. The upside is if the actual amount due is higher than the $130/month, we only pay the $130.00. The downside is just the opposite. If we owe less, we pay the $130.00 anyway. It's a give and take. The set monthly payment is part of the PIPP program. HEAP helps pay down your balance by making a one time payment to each utility. My appointment today was actually a PIPP reverification. In the reverification process, our monthly payment has almost doubled. If…

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January 29, 2018