I’m praying there will be 2 kids in the car this morning

We're hoping beyond hope that Emmett will feel up to going to school tomorrow. He's been slowly doing better as the days go on but mornings are still really tough for him. Getting ready for school is often stressful for him and that will make him more sensitive to the pain. I'm not sure we will be able help him through the morning enough to get him to school. My goal is to not rush him to get ready. I want to try to keep him as calm and stress free as possible because it will get out of control quickly if I don't. Lizze and I will likely have to tag team him but with any luck, I'll be dropping two kids off at school in the AM... ☺

0 Comments

How we’re going to address the problems at school

Lizze and I were discussing the school issues that have become an unwelcome visitors in our lives. It's pretty obvious to us that there are no good options because we'd likely be trading one problem for another. What we've decided to do at this point is preserve the current status quo. That being said, we will be working to address the concerns we have by pushing for the school to be open to parental involvement. Currently, there's no PTA and no forum for parents to voice their concerns or have their voices heard. This isn't how it used to be. Before the PTA disappeared, Lizze and I were heavily involved. In fact, Lizze was the PTA President. I think one of the biggest issues revolves around the fact that there…

16 Comments

I wish I could do something to help him

The morning was rough. I didn't get nearly enough sleep because I was up with an Emmett who was in a great deal of pain. I let Lizze sleep and she let me sleep in, while she took Elliott to school. Teamwork... ☺ Emmett's in a good mood but at the same time, he's miserable because he wants to eat solid food. I looked at the sores on his lips this morning and it looks like there's another one popping up. I wish there was something that could be done but there isn't. This is one of those things that we don't know much about because it's incredibly rare and there's no research being done as a result. One of my readers brought up something called Magic Mouthwash. I think…

4 Comments

That doesn’t Bode well for the rest of us either

I totally thought Emmett there was a real chance that Emmett would be returning to school this morning. He seemed to be doing better-ish last night and I felt a surge of hope that this flare might be coming to an end. Unfortunately, Emmett woke up about 4 AM and was sobbing as he climbed into bed next to me. All I could get out of him was that his the sores in his mouth were throbbing. Apparently, he isn't doing even a little bit better. I I'm absolutely exhausted but I'm trying to make sure Emmett is as comfortable as possible so he could hopefully go back to sleep. It's going to be an extremely long day for all of us because he's miserable and that doesn't bode well…

0 Comments

#Autism + Haircut = MAJOR SUCKAGE

Elliott was feeling better this afternoon and I took advantage of that. He was desperately in need of a haircut and he was actually willing to get one. These opportunities don't come around very often because he hates getting his hair cut. Normally haircuts are a rather nightmarish event that leaves everyone stressed out and exhausted. It's a total sensory thing and a strong dislike of change. I wasn't sure how things were going to go but I'm pleased to say that Elliott did awesome. ☺ He never complained about having to get is hair cut short. His long hair was proving too much for him to maintain and we told him that we would have to cut it short if he couldn't maintain it. This is all typical teenage…

0 Comments

All I can do is what I feel in the moment, is best

It's been a pretty good day today. The boys seem to be doing better and I'm hoping that they can both return to school in the morning. Elliott's fever is gone and he's feeling fine now. I don't know what was going on this morning. I don't know how Emmett will be doing but he's still only able to do shakes and is avoiding all solid food. If he's still not eating, I don't see how he can go to school. This whole thing is so frustrating because all I can do is what I feel in the moment, is best. There's no instruction manual and very little in the way of guidance available to help us know what to do. 😱 At least they seem to be doing okay…

0 Comments

Please don’t get any worse

The boys are both home from school today. Emmett's par for the course with his fever flare and Elliott woke up the morning running a fever of 101.2°F and not feeling well. There's shit going around the school and it looks like it may have come home with Elliott. It's going to be a very, very long day. I'm hoping that whatever Elliott has goes away quickly and it doesn't spread through the house. That's the last thing we need right now.

0 Comments

I’m so fricking tired of these impossible decisions

I get so frustrated and overwhelmed because there are so many impossible decisions that need to be made on what feels like a daily basis. What are impossible decisions? Impossible decisions are decisions that must be made knowing that there are no good options to choose from. At the risk of sounding cliché, it's damned if I do damned if I don't... Currently, we're trying to figure out a solution to all the problems surrounding the boy's education. I'm not going to go into those problems again right now, but if you're in need of a refresher, you can look here. I spent an hour tonight discussing options with the kid's education specialist/psychologist tonight during our regularly scheduled Tuesday night therapy session. The way I see it, we only have…

1 Comment