Unexpected testing at the @ClevelandClinic for Gavin

Alright. We made it to the Cleveland Clinic right on time this morning. Traffic was very cooperative, and that always makes things a bit easier. Gavin's appointment went pretty well but based on what we see at home in regards to confusion; his neurologist got him in for an EEG right away. We need to know if something is wrong, but it's also a convenience thing as well. We're already here, and if they can get us in, it saves a return trip. It also gets the results to his doctor right away. Gavin just went back, and we have about 90 minutes to sit here and wait. Hopefully, everything will be normal or at least typical for him. I'm exhausted and starving, but it's going to be a little…

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My son with #Autism and #FragileHealth is back at the @ClevelandClinic today

The boys got off to school okay. Emmett had another rough start, but he got through it. Lizze and I are left a bit frazzled, but he was feeling better when he walked into the school.😀 We have a day of driving ahead of us. Gavin has to be at the Cleveland Clinic for a visit with his neurologist. It's one of those frustrating appointments, only because it will be a 3-hour drive for a 15-minute consult. His doctor is fantastic, and it's essential that we get him there. It's just a lot of driving in a car that's not doing well. Anyway, with any luck, well be back in time to get the boys from school. If we're not, Lizze's Mom will grab them for us, and we'll pick…

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Something happened today, and it was heartbreaking

I got the boys off to school and went walking. When I got home, I was sitting in the living room with Lizze and Gavin. After a few minutes, Gavin jumped up out of his chair, picked up an invisible phone, said it was an emergency and ran into the kitchen to take a call. He had a very brief, but loud conversation before coming back into the living room and informing us that Ash (from Pokemon) was in trouble and needed his help. So to recap, he had an emergency call from an invisible, fictional person, on an invisible phone, sending him on a dangerous, imaginary mission. Did you get all that? He was pretty worked up by all this and had a sense of urgency in his voice.…

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We’re seeing some concerning behavior

Tonight's therapy was focused on Emmett and his struggles with frustration. There are a ton of moving parts to this situation and to further complicate things; we can likely add puberty to the mix as well. We think that we may have to adjust his ADHD meds as well. He's so incredibly impulsive, with excessive amounts of energy and it's becoming a bigger problem. It's not uncommon to require medication adjustments, especially during puberty. It's something we have to talk to his doctor about. What I want to do for the moment is to tighten things up at home. Emmett does so well in school, and I suspect, like many kids with Autism, the structure school provides a big help. We can mimic some of that at home. Perhaps that…

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Coping with Frustration

The boys had a great day at school today and that great day day quickly went downhill after arriving home. Lately, Emmett has been struggling in the coping with frustration area of his life. He goes from zero to full-on rage in nothing flat. While he has legitimate reasons to be frustrated, the issue at heart is his inability to cope with said frustration. I think part of the problem is that while he loves school and does remarkably well, it's also very taxing on him. When he gets home from school, he sorta crumbles. What we have to do is find a way for him to more constructively manage these emotions. We have some tools at our disposal and we need to get him back into using them on…

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Just a quick update about Ruby

We had to get Ruby into the vet because we were concerned about her stitches and what looked like recent bleeding. This is what we were looking at. Turns out she's actually okay. That's a big relief. ☺ She did mess up one of the stitches but the incision is still closed and she's not bleeding. She's a very, very, very, very high energy dog and even sedated, she's too active. That causes the muscles to tighten and fluid to seep out a little bit. That's my takeaway from our appointment. She's in good shape but she needs to be inactive. Unfortunately for her, that means she's going to continue living in her kennel until next Monday. She needs her rest because she needs to heal. We're going to put…

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Another Day Another Routine Disruption

The boys got off to school after a rough start to the day. They were at each other's throats before they were even dressed for the day. That said, they made it to school, albeit a bit later than normal but in a good mood. I got my morning walk done and was just settling in to get some writing when Lizze noticed a problem with Ruby. Ruby was fixed about a week ago and has been sedated and living in her kennel, with her cone of shame because she's just too crazy. Unless she's physically in our lap, she's too hyper and she's not allowed to be until next week. It appears that she's popped at least several stiches and there's been some recent bleeding. It also looks like…

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How I deal with bad days like today

One of the things Autism parents have to frequently deal with is bad days. Good lord, I have plenty of those and I'm sure many of you can relate to that as well. If you can't, please share your secrets to life because I could definitely use them. 😉 While I won't go into my day, mostly cause I've already written about (see here), I do think it's important that share how I'm cooing with it. Some bad days are worse than others. Today was somewhere in the middle but it really got under my skin and I feel like I wasn't coping well. I was just sorta festering and that's never a good thing. I don't think I noticed it as much at first because I was going nonstop,…

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