This will likely be the first and final update until we get home today. We made it to the Cuyahoga Valley Scenic Railroad safely and on time. That's right, on time. In fact, we were about 45 minutes early. ☺ Not sure how long of a day this is going to be but it's a much needed break from all the stress in our life right now. It's going to be an amazing day and I'm so grateful for the opportunity. ☺
I want to close the day on a positive note. I'll talk about the rest later. The boys and I have an early day ahead of us. You may remember I mentioned last month that my birthday present this year was tickets to take the kids on a scenic train ride. We're super excited, as none of us have ever ridden a train before. It's like a stroller for big kids. 😂 We will be spending the day on the Cuyahoga Valley Scenic Railroad. Here's a brief video about what we're going to experience. https://youtu.be/qpWfKf3oGv8 It's about an hours drive from our house and we have to leave super early. My parents are coming with us and that's awesome as well. This will take most of the day from what…
The boys have mostly recovered from a very difficult morning. They were very quiet when they got home, which normally, I'd be throwing into the win column but they were quiet for the wrong reasons. Eventually, the quiet turned into screaming and yelling because Elliott and Emmett were at each other's throats. They just sorta turned on each other. We're now finishing up dinner and I'm taking everyone to the park. I feel like shit right now because this whole thing has me physically and emotionally exhausted. This is a lot to deal with, especially when I have my own emotional struggles I'm working through. That really doesn't matter because there's a greater good being served by pushing myself a little more than I'd like to tonight. These guys need…
The kids got off to school, but Elliott was already struggling before he left. To his credit, he went anyway and I'm proud of him for pushing himself. I know it's not easy for him or Emmett but it's only been a month and they need time to heal. Being Autistic, likely means that this will be even harder for them. Gavin and I went walking with my Mom after dropping the boys off at school. I think she's about 2 months post knee replacement now and this is the first time I've been able to walk with her for a long time. We used to meet every day and walk a few miles but her knee was so bad that she couldn't. She's doing awesome and we walked 1.5…
Gavin had his blood work done first thing Monday morning. The lab has had almost four days to run them and fax the results to the pharmacy. They have yet to do so. Mind you, this is a stat order meaning it's a priority and should be completed the same morning. Unfortunately, getting the lab to fax the results has been an exercise in futility. This time however, it wouldn't have mattered anyway because the new script never came through correctly and had to be resent this afternoon. Hopefully, everything will be in order for a afternoon delivery today. At this point, I still don't know if the updated script will even be approved. Gavin's had six months of good numbers and that's makes him eligible for a 14 day…
It's been a day. That about sums it up. It's not been particularly good or bad, it's just sorta blah. The kids got to school and did so mostly on time. Gavin and I went walking after that and he did really well. I totally feel like we'll be able to bump things up next week and continue building from there. I've got a shitload on my plate and I'm trying to get through some of the backlog without continuing to get buried. It's not an easy undertaking and frankly, I suck at it. Well, I know I need to do better. I suppose that's a nicer way to put it. I'm still trying to find a new car. I'm about 90% on the financing but there are some things…
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Gavin's getting a promotion of sorts, at least it feels that way to him. He had his blood work done on Monday as he usually does, but this time it's a bit different. Rather than requiring blood work every week and only receiving 7 days worth of Clozapine, he's moving to blood work every 2 weeks and a 14 day supply of Clozapine at a time. This means that his numbers have been stable for at least 6 months. This also assumes the powers that be will allow the change. Everything has been submitted and I don't foresee it being an issue. Gavin is very excited. It doesn't necessarily change a whole lot for him but he goes from blood work every week to only needing it every other week.…