I'm gonna make this quick because it's been a long day and I'm exhausted.  It was a really rough day for a million reasons but things improved as the day went on. Sometimes I crumble under all the pressure because I'm human and that's okay. Today was just one of those days.  On a positive note, we made some progress on the Gavin getting a wish granted front. I'll hopefully be able to share more later. For now, please continue to keep your fingers crossed because Gavin truly deserves this. 

I'm not having a good day. There's no way to sugar coat this at all. I'm just not having a good day.  Lizze is struggling, and frankly, that impacts all of us. I'm under a tremendous amount of stress and pressure. Some of which I put on myself, and others that I have no control over.  Emmett's struggling and all Gavin wants to do is talk to me about his games. I can only take so much of hearing about his tablet games. I bend over backwards to accommodate this because it's something he's really proud of and wants me to be a part of. But it's not easy.  I didn't hear back about Gavin's labs today and it'll have to wait until tomorrow now. That has me on edge. …

I love my kids and would rather have them home with me than not. At the same time however, I'm counting down the days until next Thursday when they return to school.  We have some major concerns as far as school goes this year, mostly in regards to Emmett.  Aside from the medical and sensory issues, there's still a great deal to prepare for, the biggest and most challenging is clothes. Emmett and Elliott both need school pants. The problem is, the pants they need probably don't exist.  Elliott does okay with clothes, for the most part. Emmett is the real challenge and finding him pants he'll actually wear has been impossible thus far.  He has to have them fit a certain way, or else he won't be comfortable.  The…

Gavin and I got off to a late start in regards to his bloodwork, but Lizze and I both had rough night sleeping. Emmett was really struggling with everything. He couldn't get comfortable in his bed, our bed, under any blanket, and no matter way we tried.  I slept on the couch because I felt that was the best way Lizze and Emmett would both be able to sleep. Emmett was sleeping before I went to the couch.  Anyway, Gavin and I are at the lab right now. He's waiting for his turn and crossing his fingers that this will be the last daily blood draw.  As long as his numbers are good, we will probably move to weekly blood work, and Gavin's okay with that.  I'm really hoping that…

The day has been tough one. I'm really trying to reduce my stress levels but life doesn't want to cooperate. The boys have been out of control today and I'm now officially counting down the days until school starts next week.  Gavin seems to be doing okay today and I'm grateful for that of course, but I can't help wondering when the other shoe is going to drop.  I'll have a larger Gavin update in a little bit. Right now, I'm focusing on relaxing and trying to bring my blood pressure down. I'm currently hypertensive and that's got me really stressed out. I see my doctor on Monday and we'll see how I'm doing then.