The kids are getting really excited about leaving for Florida. They're starting to sorta make plans for our time down there. Emmett's big plan is to avoid killer bees. That's a pretty good plan if you ask me. lol I'm figuring out the exact times of everything related to travel from Ohio to Florida. We have less than one month to get this all our ducks in a row.
It was a pretty unusual anniversary for Lizze and I. The boys let us sleep in and my beautiful wife let me take a nice mid-morning nap. ☺ We had a quiet morning and it was nice. No one was fighting or causing trouble by pushing the others buttons. Everyone seemed content and that doesn't happen very often in a house with three kids on the Autism Spectrum. lol About mid-afternoon, we took the boys to my parents house and then went to visit Lizze's Dad at the hospital. We didn't stay long because he was exhausted, but it was nice to see him doing so well. ☺ After that, we ended up back at my parents house for the rest of the day. My Dad and the boys were…
I just realized I made a pretty major banking error. I was telling Lizze that we were doing much better this month than I thought we were. It didn't seem right but I checked, double and triple checked. This was very positive because it was going to help us get ready for our trip. As we were talking about it, my stomach sank because I realized why this had been bothering me. I paid a very large bill to a major utility and forgot about it. Between Gavin's medication change, planning for our trip and a major family emergency, I completely forgot. I had correctly tracked everything but that. For whatever reason, that payment hasn't posted yet and it's been quite a few days. I take full responsibility for this…
I'm super tired, no surprise I'm sure. This will be short and sweet, I promise. I wanted to take a minute and share that today is our fourteenth anniversary. Lizze and I have been married since 2003 and still going strong. Life hasn't always been perfect, and neither has our marriage. We've learned a great deal about ourselves and each other along the way. Being special needs parents isn't an easy job, and it takes one hell of a toll on a marriage. We've had to work extra hard to overcome these challenges. We've learned from our many mistakes and we'll continue to do so into the future. I'm so grateful to have been able to spend all these years with my best friend and I can't wait to spend…
It's been almost five days since we lowered Gavin's Clozapine to 500 mg/day. Aside from Gavin incessantly talking, I haven't noticed any changes in his behaviors. His Schizophrenic symptoms haven't changed for better or worse. The only things we've been hearing about are body aches and vision problems, but those shouldn't have enough anything to do with this particular change in medication. To be honest, I'd be comfortable dropping him down again before we leave for Florida. We're still going to wait but I don't foresee there being any changes in anything once we do. As I'm thinking about this, the only other concern we have taken place prior to any of these changes. On Tuesday night, Gavin briefed Dr Pattie and I on his latest mission. According to Gavin,…
Lizze and I spent a large part of the morning, organizing Gavin's IVIG supplies. There are so many supplies we've accumulated over the years. Wenneeded to get them organized and inventoried in order to have a better awareness of what we have. There were a ton of smaller supplies, like alcohol preps, obsites and needles.. We received a delivery of new supplies today and I organized all the new equipment into what is needed for each individual infusion. They're like little infusion kits, ready to go each Monday and Friday. It may not seem like a big deal but it took forever and it helps to keep everything better organized and efficient.
We're aiming for a quiet day, after a long and emotional week. The only thing on the agenda aside from housework is possibly visiting Lizze's Dad at the hospital. We aren't sure if that will be a possibility or not, it depends on how he's doing when they finally wake him up. Assuming we can get someone to watch the boys, we like to spend some time at the hospital. As far as the house goes, we have to begin getting ready for our trip. I need to get Vivint out here to install the new panel and make sure everything's up to parent before we leave. I need to figure out something for the ferrets because they can't spend the entire time we're gone in their cage. They also…
I received news tonight that we will officially be on our way to Florida at the end of the month. We've known for a little while that Gavin's wish was going to be granted, but we didn't know when we would be going for sure. People come from all over the world to stay at Give Kids the World. There were only a few slots open and we weren't sure we would be able to get in. We are now officially registered and our spot is reserved for us at the end of September. The one big hang up that came up at the last minute had to do with transportation. They were going to rent us a car for the drive but we realized that we had to…