Meltdowns Archives - Page 143 of 299

I’m so overwhelmed and I need life to slow down

It's been a really, really long day and I'm not exactly in a good place. I simply wanted to drop a general update because there are a couple of things that have occurred. First and foremost, Elliott's appointment at Akron Children's Hospital Behavioral Health has been moved. They called me the other day with a cancelation opening for October 9th and I jumped on it. That's a almost a full month earlier than the original appointment and that's absolutely a good thing. We want to get Elliott whatever help he needs to be happy and healthy. I also received a phone call from the claims adjuster in regards to our storm damage from last week. The good news is we have an appointment but the bad news is that our…

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September 26, 2018

Confessions / My thoughts

Confessions: Sometimes I can be a shitty husband

No one is perfect, least of all me. I'm as far from perfect as one can get. Sometimes I can have days where I'm farther from perfect than I typically am. Today is one such day. Lizze and I are under a great deal of unrelenting stress. We have everything with the kids, everything going on with her and everything going on in the rest of our lives (finances, the house, the car, where we live etc). It takes its toll at times and sometimes, I just overload. Lizze was trying to talk to me about something in regards to her health and I was not a good listener. How hard can that be? Clearly, it's hard for me and that's unfair to Lizze. It really is unfair and it's…

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September 25, 2018

Gavin / My thoughts

He seems better today but time will tell

I slept like the dead last night. The boys got off to school and Lizze is at her Tuesday morning appointment. When she's done and there's a break in the weather, I'm going to try and go walking. At the moment, I'm finding all kinds of reasons not to go but I know I need to go anyway. At first glance, Gavin seems to be doing okay-ish. He's currently sleeping off his morning meds but the brief encounters I've had with him thus far have been better than yesterday. There's sort of a status quo when it comes to Gavin. It will change from time to time as his regression and health issues worsen. Whenever the dust settles, there's usually a new status quo. We seem to have returned to…

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September 25, 2018

Gavin / My thoughts

It’s heartbreaking to see him like this

Gavin's IVIG infusion supplies arrived but didn't arrive until dinner time. I had Gavin immediately put his infusion together and get it going. While he was doing so, he began getting upset for the weirdest reason. Out of nowhere, he kept insisting that he never said there were missing supplies and definitely didn't say anything about 3 needle sets missing. This was a WTF kinda moment for us because I haven't a clue why he said this or why he was so upset. This was weird for a couple of reasons. The first reason was that he's the one who told us that he was missing supplies last week and told us he was missing 3 needle sets. Why he would even bring it up and then deny having said…

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September 24, 2018

Autism Parenting Insight / Inspirational Posts / My thoughts

It may not be pretty or graceful but we will survive

Life is a never-ending series of tests and I'm currently being tested. As an Autism and Special Needs parent, I'm no stranger to challenge and have become accustomed to the daily struggle that many Autism and Special Needs parents face. Being accustomed to something shouldn't be confused with becoming easier. We've (Lizze and me) have been knee deep in managing Gavin's physical and emotional health problems. They are never-ending, frequently changing and can often be a fulltime job, in and of themselves. As we're working through those issues we're also trying to make the necessary preparations in order to file for permanent guardianship of our newly minted 18-year-old son. Lizze is experiencing changes in her overall health and health care that makes things more challenging right now. Elliott appears to…

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September 24, 2018

Gavin / IVIG Infusion / My thoughts

I’m not really angry because I screwed up

It's Monday and that means Gavin should be receiving his IVIG infusion. In fact, it should have already been done. Unfortunately, we're still missing supplies. I talked about this last week and explained the somewhat angry phone call I got from the person who is in charge of making sure Gavin gets his supplies. I've been assured that they will arrive today sometime but beyond that, there are no specifics. I'm sure they will arrive and aside from throwing off his schedule, there's no harm in waiting until later today to do his infusion. I'm not angry or really upset because we didn't check this particular delivery. I wasn't here when it showed up and it sorta fell through the cracks. If I had checked it, I would have known…

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September 24, 2018

My thoughts

Hell no that didn’t stop me

I had a hard time sleeping last night. Lizze says I was snoring pretty bad, but that's actually uncommon for me but it does happen from time to time. I was stuffy and that always makes it challenging for me to fall asleep. Lizze is adjusting to her recent change in medications and so she's struggling with sleep a bit as well. She got the boys ready and I took them to school, before getting my 3 miles in for the day. The only part of me that wanted to walk was the part of me who wants to see me hit my goal of 80 miles this month. I'm almost there and I need every day I can to see this through to the end. Unfortunately, within the first…

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September 24, 2018

My thoughts

Sometimes surviving is a monumental victory

We survived another challenging day. I ended up having to run some errands this afternoon and so we didn't make it to the park. I don't think anyone really wanted to go, so no one was hugely disappointed. Elliott struggled this afternoon. It's hard to explain what exactly he goes through but they seem like sorta extreme reactions to ordinary things. I know he has Autism. I know he has ADHD and anxiety. I also know that he's almost a teenager as well. What we're seeing is more than that and it's one of the reasons we're seeking help from Akron Children's Hospital. Between the actual testing and twelve years of observation, Dr. Pattie is concerned that we may be looking at bipolar disorder. There are no clear-cut edges here…

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September 24, 2018