I had a really hard time sleeping last night. I think it was mostly allergies because I was really stuffy. Anyway, Lizze and I both slept in because we could. She's off to class, and the boys should be home from their grandparent's house any minute. As much as I need a break from the stress and chaos, I really miss them when they're gone. Actually, they just got home, so I'm going to cut this short for now. :-)
We've had a really long day. It was a mixed bag of good and bad, but it was a day we survived. In fact, there were even some times we thrived. ☺ I mentioned in a previous post that Elliott and Emmett had me up for most of the night. As a result, I got off to a rough start this morning. Lizze was struggling as well because of one of her health issues. We had a relatively lazy afternoon because we both felt like shit. It sucks that we had to spend our down time feeling down, but if the kids were here it would have been so much more difficult. Thankfully, we both felt better as the afternoon wore on. After dinner, we went for a nice long…
The boys are gone, and on their way to the Akron Zoo with their Grandparents. That's a bit of mixed emotion for us, because we wanted to take the boys, but all that matters is that they get to go. We'll just take them to the Cleveland Zoo in a few weeks. As far as how Lizze and I are going to make use of the time, that's changed a bit. I was able to get some sleep after a sleepless night with the boys. As a result, I feel much better. Unfortunately, the same can't be said for Lizze. After eating lunch this afternoon, she's now sick to her stomach. This time is particularly bad and she's down for the count. It's a Gastroparesis thing, and will eventually pass…
I've decided what I'm going to do as soon as the kids leave for their Grandparents. Considering that I've been up with both Elliott and Emmett all night long, sleep is on the menu for the rest of the day. I'm so exhausted that I can't see straight. As soon as the boys leave, I'll be collapsing on my bed. This is the second night in row that I've been up with the boys all night, and I desperately need to close my eyes.
Lizze and I will be getting a break this fine Sunday. The boys will be spending the day, and subsequent night with their Grandparents. It feels like we haven't had a night off in forever, but it's only been about two weeks. It's amazing how two weeks of raising three kids with Autism can take it out of a parent. I'm not sure what we're going to do with our time. Perhaps we'll catch up on some sleep. Maybe we'll go for a walk, or catch a dollar movie. The whole point is to have some time away from the boys and devoted to ourselves. We're so grateful for the time, regardless of how we end up using it. ☺
I'm pretty sure I told you that Gavin's IVIG supplies were delivered on Wednesday. What I didn't explain was that we held off on giving it to him until Friday. The reason behind that seemingly counterintuitive move was simple. By the time we could have given him his infusion on Wednesday, it would have been really late in the day. With his next scheduled infusion being essentially twenty four hours away, it was too close together. If we had gone ahead with a Wednesday infusion, we would have had to push off the Friday infusion, thus fucking up the entire schedule as we worked to get things back on track. By holding off and waiting until Friday, we were able to preserve the schedule and keep things from getting worse…
I wanted to take a few minutes tonight and share some pictures from the last couple of days. I'm a little behind on the updates but you can at least see some in the moment shots. I'll follow up tomorrow with a couple of updates.. ☺
The kids were gone last night and won't be back until dinner-ish today. Lizze and I stuck close to home last night because our plans today will take us out of town for a little bit. It's not going to be anything major, but we're going to lunch and to do some shopping. We went to bed relatively early last night and I was up pretty damn early this morning because my Dad was coming over to help me fix the ass backwards plumbing in our shower. It took a bit of improvising but we now have a working shower again and for that, we're grateful. I'm feeling pretty energized today and not at all needing to take a nap. I know I probably should take advantage of the time…