IVIG Archives - Page 89 of 95

Feeding our marriage

Lizze and I had a nice night. We went and saw the new Spider-Man Homecoming movie, and it was awesome. I can't remember the last time we spontaneously went to a movie, let alone a super late showing like tonight. It felt good to be able to do that. It's important that Lizze and I get time to feel like a couple. Things like this help to keep our relationship strong, and our sanity intact. Being Autism parents is really stressful, especially when it comes to maintaining a marriage. It's really important to focus on our relationship, because that helps us to be better parents.

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July 8, 2017

Date Night / My thoughts

Hello smidgen of normalcy

I'm feeling a little better and we've decided to go to a movie. We haven't been to a late night movie since Harry Potter... Lizze made me take her to each movie at midnight, on opening day. ☺ Anyway, this is rather spontaneous and really out of character for us. For that reason alone, I think this is a great idea.. Hello smidgen of normalcy.. ☺

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July 7, 2017

My thoughts

At least until I feel better

Lizze's appointment went well and we grabbed some Chipotle on the way home. Unfortunately, said Chipotle is not sitting well at the moment. It looks like it will be a quiet night on the couch, at least until I feel better.

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July 7, 2017

Gavin / I Need Advice

I need advice from Adult #Autistics or those with #SensoryProcessingDisorder

Okay folks, I've always been someone who's keenly aware of how Adult Autistics can be an absolutely amazing resource for parents of kids with Autism, like myself. Today I'm reaching out to the Adult Autistic community, and or people with Sensory Processing Disorder. I have a question about my oldest with Autism. My goal is to gain a better understanding of what he's experiencing, so I can better support him. Gavin usually goes with me when I fill up our five gallon water jugs. These jugs have built in handles, to make them easier to carry. Some of the jugs have no grip on the handle, while others have a slightly textured grip to keep it from slipping out of your hand. Gavin always complains about the water jugs with…

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July 7, 2017

Fibromyalgia / Lizze / My thoughts

She’s in a shitload of pain

The boys are officially gone and we are t-minus one hour until Lizze has to be at the doctors. They'll be gone until sometime tomorrow. I'm feeling a bit more energized own after hitting the treadmill for a bit. I'm not sure what we're going to do tonight, because Lizze is still in a shitload of pain from the weather. Maybe we'll pickup dinner and work on season 3 of iZombie. Simply not having to worry about the boys is a huge, albeit temporary relief. ☺

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July 7, 2017

Fibromyalgia / Lizze / My thoughts

Lizze isn’t doing so good

Lizze is definitely under the weather today because of the weather today. It's on and off storms, making life very painful for her to endure. I'm hoping that she's feeling better as the day goes on, and after a long nap. It would be really nice for her and I to be able to do something, besides sleep, while the boys are gone. If she's not feeling better, than the goal will be to make her as comfortable as possible, and maybe bring her dinner... ☺

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July 7, 2017

Autism Parenting Insight / My thoughts

As an #Autism parent, I never take these for granted

It turns out that we're looking at another break today, and that's amazing. The boys will be going to Lizze's parents for the night, and we will get some time to ourselves. This has been an unusual week in the sense that we're getting so much time off, but it's an absolute blessing. Lizze and I have zero plans at this point, but that may or may not change. I'd really like to go for a nice long walk, but the weather is rather hit or miss today. We have storms in the forecast, and we'll have to see how things go. The bottom line is this. We are incredibly grateful for the time off provided by both sides of our family. I know that not everyone gets breaks like…

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July 7, 2017

Gavin / IVIG Infusion

IVIG infusion supplies are late

There's been a pretty major snag today. Gavin's IVIG infusion supplies have not yet arrived. It's been a few months since we've had any problems, and maybe they're out for delivery today, but it's put his infusion on hold. The deliveries are somewhat unpredictable because they don't come out in the same day each month. Sometimes they're delivered early, sometimes they're late, and other times they're on time. I have a call in but haven't heard back yet. For that matter, we still don't have his new sharps container that I ordered last week. I'm not sure what's going on. The pharmacy policy is that expect your order, unless you hear from them. I've not heard back from them, so everything should be okay, based on their instructions.

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July 7, 2017