I just survived a really long night. Unfortunately, Elliott didn't sleep last night. He wasn't able to fall asleep and still hasn't fallen asleep. My body is shutting down, and his is bouncing off the walls. Lizze is sending me to bed, and she's going to work on Elliott taking a nap. I'm leaving this super short because that's all my brain can put together. Zzzzz
Last night ended with more tension than I like, but before that, we had a decent evening. I took everyone to the park and we walked the track. We had to sorta improvise a bit because there's major construction going on in the park right now. We had to map out a new path and that required walking on a gravel trail for about a quarter mile. Walking on gravel is just fine for everyone. Everyone that is, except Emmett. Emmett will only wear crocs and only do so without socks. Every tiny piece of anything that touches his foot, requires the foot cleaning routine. We walked about a mile and a half last night. However, it's was more like a mile and a half of line drills. I would…
I haven't been able to jump on the treadmill today, but I've been pretty busy. Gavin and I had to go get his new glasses this morning. Emmett came along because we needed to pick up a few groceries, and he wanted to make sure I got the right cereal. Gavin loves his new glasses and that's always a good thing. He says he can see better. ☺ Emmett's happy cause we got the right cereal, and I made it through all of this without losing my mind. lol
Emmett is very clearly in a fever flare. He's in a horrible place, and seems to have lost his ability to talk without screaming. He's been screaming all morning. I know he's miserable, and I don't blame him for any of this but it's not easy to maintain the mindset, when there's so much screaming. I wanted to share a time line of sorts, that show his temperature as a fever flare is overtaking him.
I wanted to share this, in case you missed it in a previous post. It was mixed in with a bunch of others, and probably deserves its own post. We haven't had a family picture taken in forever. While this isn't a professionally shot image, it's still special. The only reason we even have this is because of the kindness of a stranger. I really like this picture and I'm grateful that the kind woman offered to take it for us. ☺
Gavin is getting more and more frustrated with himself over his disappearing abilities. I don't really know how else to describe it. He hasn't necessarily forgotten that he should know how to do things, but he's forgotten how to do them. I can't even begin to imagine what that's like for him. While I'm overweight, my cholesterol is borderline, and I wage war with Depression, I'm otherwise blessed with good health. Gavin is experiencing things that would be more common for someone seventy years his senior. He forgets almost everything (short term memory) and easily loses track of what he's doing. When it comes to the games he plays, he can focus, but getting him to draw a picture ends up being too much for him. We return to his…
Last night was filled with meltdowns, freak outs, and trying to figure out what the fuck was going on. Emmett was complaining of a tummy ache but he couldn't express anything more than it hurts. It's really hard to know what's going on when he's unable to help us better understand what's he's dealing with. There's no question he was upset about his stomach but we couldn't tell if he was hunger related, constipation, or nausea. When we asked him about describing what he was feeling, he just melted down and screamed I don't know. He ended up falling asleep without a huge amount of trouble. He struggled a bit because he was convinced that he was going to puke, and didn't want to sleep on the top bunk. Lizze…
I was outside taking a video of a bumble bee loading up on some pollen. As I was doing that, a second bumble bee dropped in out of nowhere and photo bombed the video. lol https://youtu.be/8D3iPZCN0hY