IVIG Archives - Page 51 of 95

Never Give-up Hope

I finally got the kids home from school today, both had great days by the way. Let me begin with a very honest statement. While I was holding out hope that we would figure everything out for this trip, it wasn't easy, especially when it came to the issues with getting a car to make the drive with. I heard back from Wishes Can Happen and they were able to workout a deal with Hertz for the rental car. It's pretty straight forward but more expensive, and it requires my Dad's help. In case anyone else ever runs into something like this, here's what we figured out. My Dad is going to rent the van in his name, and add me as a secondary driver. He will be reimbursed for…

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September 19, 2017

My thoughts

Who would have thought it’d be this difficult

This whole getting ready for the potential journey to Florida, for Gavin's Wish trip, is unexpectedly stressful. Things are more complicated because we're driving and that complication comes in the form of the rental car. I say potential journey because if we don't figure out the rental car, the trip is canceled. Flying isn't an option, at least not a good one. I can't even imagine taking three prone to meltdowns, kids with Autism, who are terrified of heights, on a plane. When I say terrified of heights, I mean won't even go on the top bunk bed kind of terrified. I can't imagine a scenario where that would end well, for anyone. Even if that weren't a concern, Gavin's health is such that I have no idea how he…

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September 19, 2017

Fit4Autism / My thoughts

Sometimes I have to really push myself

It was a rough morning with before school meltdowns, that left me wishing I'd ignored the alarm and continued sleeping. Having said that, I want to make the best of what time I have in the day. Rather than giving into my desire to go straight home after dropping the boys off at school, climb back into bed and sleep away the stress, I chose a different path. I dropped Lizze off at her appointment, and went walking with my Mom. No part of me wanted to go walking, but if I don't push myself and continue working towards weight-loss, I have no one to blame but myself. We ended up walking almost four miles before I had to pick Lizze up after her appointment. I feel pretty awesome. I…

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September 19, 2017

Emmett John / Meltdowns / My thoughts

Massive Morning #Meltdown

Elliott had a really good morning but Emmett's was pretty rough. He had a pretty massive meltdown over some confusion about when we are supposed to sign his homework folder. He was thinking that since it's Tuesday, we should be signing for Tuesday. We tried explaining to him that we don't sign for Tuesday until he comes home from school and we go through his folder. I explained that we signed Monday's spot and will sign for Tuesday, when he gets home from school today. He was so freaked out, I had to call the school so they could verify that Lizze and I were correct, and Emmett could relax. Even that didn't help him feel better about this whole folder thing. This is pretty straight forward logic, and I'm…

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September 19, 2017

Elliott / Emmett John / My thoughts / Today's Victory

This is a huge victory for us

This will be super short and sweet, because I'm going to bed. For the first time in a long time, both boys went to sleep tonight without any issues. Elliott's been having a rough time falling asleep and Sunday night was really bad. Tonight however, both he and Emmett fell asleep to Lizze reading Harry Potter. This is a pretty big victory, and it means that I have a good chance of getting so sleep tonight. I fully intend on taking advantage of it.

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September 19, 2017

General Update / My thoughts

My day summed up in a 30 second read

While I haven't gotten much accomplished today, I was able to deal with a utility issue, and get all the paperwork, including PR releases for both organizations involved in our trip. That's not a ton of work but it's done and one thing we can check off our list. On the school front, Elliott finished all his makeup work from when he was sick, and Emmett aced his spelling pre-test, so he doesn't have to take the Spelling test on Friday. He was really proud of himself. ☺ Gavin's been relatively quiet today. I'm not exactly sure what he's been up to but it can't be too bad because I haven't heard about anything yet. We did get Gavin's IVIG infusion done first thing this morning, right after breakfast. He…

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September 18, 2017

My thoughts

My stress level is at infinity and beyond

Today's been stressful because I've not been sleeping much at night lately, Emmett began the day with a massive meltdown, only to have Elliott join him with one of his own shortly after. I have been trying to get everything ready for us to leave but financially, things aren't good at the moment. I very much dislike our bank but moving has not been an option because of the way the kids SSI is setup. I'm exploring a move right now and I'm waiting for a callback, as to how we handle the SSI. As it stands, I get paid the night before we're supposed to leave and that's when we'll be able to get our shopping done, at least whatever we have left. Another problem that I have to…

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September 18, 2017

Autism Parenting Struggles / My thoughts

I wish I was in a better position today

I got almost no sleep last night. I remember seeing 5 AM before finally passing out from exhaustion. Emmett was struggling with his clothes this morning as well. Lizze was trying to let me sleep but there was to much challenge for just one parent. We definitely had to tag team the boys, in order to get them to school. Not fun. Not fun at all. I wasn't in any condition to walk this morning but maybe tonight. One of the things I'm going to be focusing on today, especially since I'm not walking, is my diet and hydration. I'm losing weight again and that feels good. I'm also not feeling the need to stress eat or eat late at night. I have my meals planned out for today already…

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September 18, 2017