IVIG Archives - Page 21 of 95

Everything in one needle stick

The boys were up super early today, before 5 AM early. They were excited because Saint Nicholas paid them a visit last night and left some surprises in their shoes. As a result, they were a bit grouchy but we managed. Gavin and I took the boys to school and then headed to get his bloodwork done. We were able to get the labs from his other doctor faxed down, so we are able to combine his labs and do everything in one needle stick. At the moment, I'm just waiting for Gavin to come back out before we head home. Traffic really sucked this morning but we made it. It took ten times longer to get there but we got there. ☺

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December 6, 2017

Gavin / My thoughts / Vivint Gives Back

Keeping an eye on Gavin because he’s not doing well tonight

Gavin isn't doing so well this evening. Everything was fine until an hour after he went to bed. He came downstairs in a lot of pain, feeling nauseated and convinced he was going to throw up. We told him if he thinks he needs to puke, he needs to be in the bathroom. If he was going to puke, we didn't want to give him his meds if he was going to puke them right back up. He went to the bathroom and then took himself back to bed, without letting us know. I've been keeping an eye on him through our Ping Camera, provided by the Vivint Gives Back program. We're able to watch and listen from wherever we are in the house. Gavin is currently sleeping and we…

3 Comments

December 5, 2017

Autism Parenting Insight / My thoughts

Have you ever been so stressed out it makes you sick?

Between last night and this morning, my stress level reached a point where I ended up sick. After I took the boys to school this morning, I started not feeling well. I thought that maybe I was just hungry or something but after eating breakfast (the same yogurt medley I have almost every morning) I felt worse. As life has become more challenging and stressful, I've started dealing with acid reflux. It doesn't always happen often but it tends to show up when I'm really upset or stressed out. It's fair to say that I have a lot on my plate and there are times when it just becomes too much. Between the worries about now needing a new car, dealing with the mortgage company, not sleeping last night, worrying…

30 Comments

December 5, 2017

My thoughts

I have to really push myself today

I didn't sleep well last night at all. The last thing in the world I feel like doing is battling traffic, through shitty weather and spending the rest of the day at the Cleveland Clinic. We're going to be heading off to Dr. Reynolds shortly and hopefully that will help me to wake up. Not sleeping well sucks, especially after a day like yesterday. Poor sleep after a day like yesterday and then waking up to the screaming we had this morning, is simply draining. I'm really having to push myself today.

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December 5, 2017

Emmett John / Meltdowns / My thoughts

The screaming is horrible

Emmett is in a horrible mood this morning. I don't know why he's in such a nasty frame of mind but he definitely is. Everything results in him screaming at someone and then saying that he doesn't deserve to eat breakfast or some nonsense like that. All I can say is thank God they have school today because I would make it if I had to deal with this all morning. School will probably put him into a better mood because it always does. It's my goal to ensure this doesn't set the tone for me today. I'm feeling on edge and stressed out as a result of all the screaming this morning.

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December 5, 2017

Cleveland Clinic / Clozapine / Gavin / My thoughts / Pediatric Neurology

This is what’s going to happen at the @ClevelandClinic today

Here's the game plan for today. Shortly after taking the boys to school, we have to get Gavin to Dr. Reynolds for a follow-up and to discuss how he's doing since lowering the Clozapine dosage. The appointment is pretty early so we should be his first or second patient, meaning it won't take all day. 😀 On the way home, we will take Gavin for his weekly bloodwork before returning home to eat a quick lunch and then head to Cleveland for the rest of the day. Assuming we aren't back in time to get the boys from school, my Mom is going to pick them up and hang out with them until we get back. I'm pretty sure this is a 3 hour EEG so we likely won't get…

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December 5, 2017

My thoughts

There’s good news and bad news tonight

Today proved to be tough for a few reasons. While the car was made drivable, my concern proved to be correct in regards to whether or not the car was worth it to fix. Turns out the needed repairs just aren't worth it. We got the front brakes and rotors replaced because my brother is awesome, but sooner than later, the other issues will become more problematic. What does this mean? Well, we will be able to make it to the Cleveland Clinic in the morning for Gavin's EEG. That's a huge positive for us because we worry so much about Gavin. This also means that we are in need of a new car. That presents quite a few problems, the biggest of which is that we can't possibly afford…

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December 5, 2017

Autism Parenting Insight / Gavin / IVIG Infusion / My thoughts

Sometimes I feel like a dick for raising my voice

Gavin had his IVIG infusion this morning and he did it on his own. This was probably the most successful one that he's done on his own. The infusion went relatively well and there were no physical hang ups after it was started. Gavin did get upset while he was putting the needles in place though. He doesn't deal with frustration very well and has a tendency to want to quit or get help before he's really tried. Today was one of those times. There was an issue with the tape the holds the needles in place getting all bunched up. His first reaction is to panic. Lizze and I were right there but we didn't rush to his aide because we wanted him to work through it. All he…

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December 4, 2017